January 23, 2018

Looking for a way to have some fun and support a great cause? Then look no further than Camp Keep Smiling, a camp for Texas Children’s patients ages 10 to 16 years old with cleft lip and palate.

Hosted by the nonprofit Camp for All, the camp in Burton provides a safe, fun environment for patients between the ages of 10 and 16 to engage in meaningful social interaction and gain self-confidence. Participants can enjoy activities like canoeing, fishing, archery, ropes courses, basketball and arts and crafts.

Texas Children’s Pediatric plastic surgeon Dr. Laura Monson, who helped start the camp, leads the initiative with other team members from the plastic surgery division. Physicians, physician assistants, nurses, OR staff and child life specialists serve as counselors who notice tremendous strides in the campers towards the end of the session.

Admission is free of charge for patients as it is supported directly by donations and the help of generous volunteers like you.

This year’s camp is scheduled for Friday, March 23, to Sunday, March 25. If you are interested in volunteering at the camp, please contact Michelle Roy at mgroy@texaschildrens.org to receive a volunteer application. Applications for patients to attend the camp are available online at this link and are due Monday, March 5.

December 12, 2017

A lot happens behind the scenes before patients are wheeled into the operating room at Texas Children’s Hospital to undergo surgery. Technicians disinfect the OR from top to bottom and a team of people with the Sterile Processing Department clean, prepare, assemble and sterilize surgical instruments for patient care.

At Texas Children’s Main OR in the Medical Center, the sterile processing team handles instruments for close to 80 procedures a day Monday through Friday and around 15 procedures on the weekends. The procedures can require anywhere from two to 12 sets of instruments each with a numerous amount of single instruments.

The team processes more than 17,000 instruments a day. To be able to handle this and keep up with the demands there are 3,200 plus sets of instruments. Sterilization of the instrument sets can be accomplished by steam, hydrogen peroxide, or ethylene oxide. Each requires special quality assurance monitoring and designated time for completion.

There are also operating rooms designated for cardiovascular cases, at Wallace Tower, Texas Children’s Hospital West Campus and Texas Children’s Hospital The Woodlands that have their own sterile processing areas.

Click here to watch Channel 11 KHOU’s story about Texas Children’s sterile processing team.

November 21, 2017

Because of the complexity of conditions seen at Texas Children’s, many patients and families view the health system and its staff as a family that supports them both inside and outside the hospital. That relationship was on full display November 15 when several patients of the Texas Children’s Craniofacial Clinic were given the opportunity to attend a free, early screening of the movie, Wonder.

Wonder tells the incredibly inspiring and heartwarming story of August Pullman, a boy with facial differences who enters fifth grade, attending a mainstream elementary school for the first time. Based on the New York Times bestseller, the film stars Julia Roberts, Owen Wilson and Jacob Tremblay.

“We feel that this screening was a wonderful opportunity to highlight the courage displayed by so many of the children that we help treat every day,” said Dr. Larry Hollier, chief of plastic surgery and associate surgeon-in-chief for clinical affairs at Texas Children’s. “And it reinforces the importance of seeing things through others’ point of view. Finally, we thought it was a great opportunity for everyone to attend a real movie premiere.”

The premiere was sponsored by members of the Children’s Craniofacial Association and Texas Children’s Craniofacial Clinic team, which treats and researches complex craniofacial differences such as Treacher Collins Syndrome, the one highlighted in Wonder.

Held at AMC Studio 30 on Dunvale Road in Houston, the screening of the movie began with patients and families walking down a red carpet and posing for photographs before making their way to the theater. The event ended with comments from two Craniofacial Clinic patients and their family members.

Grace Anto, a 10-year-old Craniofacial Clinic patient, said she could relate to much of what August, the lead character in the movie, went through.

“I have felt like Auggie,” she said. “Every time I make a new friend, it’s like a new beginning.”

Twelve-year-old Lance Dromgoole, another Craniofacial Clinic patient, agreed and said his favorite part of the movie was when August and Jack became friends.

“That was definitely the best,” he said.

Like the lead character in Wonder, Lance and Grace have had multiple surgeries to correct their craniofacial differences. Grace has had 10 surgeries and Lance has undergone 38. Some of those procedures helped Lance breathe better and others gave him actual ears, something he was born without.

Lance’s grandmother, Kathy Dromgoole, said she will never forget the first time Lance was able to put on sunglasses and that she will forever be grateful for the care her grandson has received at Texas Children’s. Regarding the movie, she said she hopes Wonder shows people that children with craniofacial differences are normal kids and that they deserve to be treated as such.

Grace’s mother, Lynn Anto, said the movie beautifully illustrates the power of kindness and how greatly it is needed people’s lives.

“Everyone is going through something,” she said. “And everyone could use a little kindness.”

Athena Krasnosky, a nurse practitioner with the Craniofacial Clinic and one of the organizers of the screening, told last week’s audience that Texas Children’s sees itself and its patients and families as one big happy family, and that everyone within the Craniofacial Clinic was thrilled to have been able to watch such a meaningful film together.

“We are so glad to have been able see this movie together tonight as a family,” she said. “We hope you enjoyed it.”

Haley Streff, a genetic counselor with Texas Children’s and another organizer of the movie screening, echoed Krasnosky’s comments and said the moving screening was a powerful experience.

“All of us here have a connection to someone with a craniofacial difference,” she said. “We all can relate in one way or another to what just happened on that movie screen.”

Six-year-old Molly Malinsky and her parents have a lot to be grateful for this holiday season. After their daughter was diagnosed with a seizure disorder at four months old, Molly is now seizure free, a miraculous outcome that her family credits to Texas Children’s world-class neuroscience team.

When the Malinskys learned that their daughter’s physician Dr. James Riviello – who had treated Molly since she was four months old – joined Texas Children’s as the associate section head for Epilepsy, Neurophysiology and Neocritical Care, it was a no brainer for the New Jersey family to travel to Houston to reunite with Riviello.

“Dr. Riviello is one of those amazing doctors who is not only knowledgeable, well respected and professional, but above all, cares deeply about his patients and their families,” Rebecca Malinsky said. “We followed Dr. Riviello from NYU to Columbia and now to Texas Children’s so our daughter would continue to receive the best care.”

When Molly was first diagnosed with epilepsy, she was prescribed seizure medication which seemed to work. Molly had no seizures for over a year, but when she was weaned off of her medication, Molly’s seizures returned. “The seizures were getting worse and more frequent,” Malinsky said. “My daughter would have 15 seizures in an hour and three to five seizures at school even when she was back on her medication, which was very scary.”

After five failed medication trials, the only option remaining for Molly was brain surgery. After her parents met with Riviello, Chief of Neurosurgery Dr. Howard Weiner, and neurosurgeon Dr. Daniel Curry to discuss Molly’s treatment plan, the team determined Molly would be a good candidate for brain surgery.

On October 26, 2017, Molly underwent laser ablation surgery, a minimally invasive procedure pioneered by neurosurgeons at Texas Children’s that uses an MRI-guided laser probe to identify and destroy lesions deep in the brain that cause seizures. As the first hospital to perform laser ablation surgery in 2010, Texas Children’s has performed more than 150 of these surgeries, making it possible to treat some of the toughest cases of epilepsy, and put the brakes on damaging seizures.

“The results are very diagnosis and patient specific,” said Curry, director of Pediatric Surgical Epilepsy and Functional Neurosurgery, who pioneered and performed the laser ablation surgery on Molly. “But for something like hypothalamic hamartoma, a particularly difficult disease to treat, it has taken success rates in curing the child’s seizures from under 50 percent to about 80 to 90 percent, so it’s been a significant change.”

MRI-guided laser ablation has not only increased the safety of epilepsy surgery, especially in cases where the targets are far from the surface of the brain, but has drastically improved recovery time. Many children go home the next day after surgery, seizure free. For Molly’s parents, their daughter’s outcome is truly remarkable.

“Since Molly’s surgery almost a month ago, she has not had a single seizure,” Malinsky said. “Her behavior has improved, her ability to learn and retain information at school has returned. Our daughter was able to go trick or treating for Halloween just four days after her brain surgery, which was pretty amazing.”

The Malinskys will return to Texas Children’s in February for Molly’s three-month followup. Meanwhile, they are grateful to Drs. Riviello, Curry and Weiner, and the hospital’s entire neurology and neurosurgery teams for the exceptional level of care, compassion, professionalism and teamwork they delivered to their daughter.

“Between our first visit to Texas Children’s in August and Molly’s surgery, everyone treated our daughter with compassion and offered ways to be helpful in the immediate and distant future as Molly’s treatment plan began to unfold,” Malinksy said. “I could not imagine this journey without the shared and genuine support of Texas Children’s amazing Neurology and Neurosurgery teams. Clearly, you have recruited the best doctors in the country.”

Click here to learn more about Texas Children’s Comprehensive Epilepsy Program and laser ablation surgery.

November 14, 2017

On November 4, Texas Children’s Fetal Center held another successful reunion event at Texas Children’s Pavilion for Women. Families from around the country and internationally traveled to Houston to reconnect with Fetal Center physicians, nurse coordinators and staff.

Since the first event in 2007, the reunion has brought together patients and their families who received life-saving fetal interventions and fetal surgeries and has become a cherished experience for families and staff alike.

“Many of these families spend extended periods of time with the Texas Children’s Fetal Center staff and in our neonatal intensive care unit,” said Dr. Oluyinka Olutoye, co-director of Texas Children’s Fetal Center. “A bond is formed among our patient families and the team members that treat their children. These families trust us with the wellbeing of the most precious parts of their lives – their children. We don’t take the responsibility lightly, and we cherish the opportunity to see these children grow.”

Jeff and Margaret Boemer reunited with other patient families to celebrate the lives of these precious miracle babies that were cared for at Texas Children’s by our maternal fetal medicine and NICU staff.

“We are grateful to Texas Children’s and all of the doctors who gave us hope and didn’t let us give up on our baby,” said Boemer, whose daughter Lynlee underwent fetal surgery at Texas Children’s to remove a large tumor (sacrococcygeal teratoma) growing from her spine. “It is a joy to have our daughter with us every day and an honor to share Lynlee’s story with other moms going through similar circumstances.”

After recently celebrating their daughter’s one year birthday in June, Lynlee is doing remarkably well and continues to inspire and impress her parents and doctors. In fact, she reached a huge milestone – she started walking and loves to play games with her older siblings.

John and Elysse Mata also attended the fetal reunion celebration with their 3-year-old twin daughters Knatalye and Adeline, who spent 10 months being cared for in our neonatal intensive care unit before being successfully separated in a 24-hour operation on February 17, 2015, at Texas Children’s Hospital.

Stay tuned to Connect for an upcoming article on the Mata twins’ remarkable progress since their historic separation surgery nearly three years ago.

November 7, 2017

On paper Joyce Enochs is the scheduling optimizer for the Department of Surgery’s Perioperative Services Department. In reality, she is the face of patient experience for children and families who are faced with having a surgical procedure at Texas Children’s Hospital.

In her role, she has taken on many projects to increase the patient experience of thousands of patients and families. Her work on communication for pre-op information has decreased errors in arrival time, location of surgery, and eating and drinking instructions. And, her efforts on scheduling has decreased the daily cancellation rate on the day of surgery from 8 percent to 3 percent.

“What an impact her work has had on the patient experience to decrease the numbers of patients sent back home on the day of surgery,” said Janet Winebar, director of Perioperative Services. “Joyce’s enthusiasm has been the driving force for the team to continue to increase the experience for our families.”

Launched in 2015, Texas Children’s Caught You Caring program is a systemwide program that recognizes employees for going above and beyond to provide compassion and kindness in the care of a patient, family or co-worker. Recently, Enochs was among more than a dozen employees who received a pair of tickets to watch the Houston Texans Play 60 game on October 1, after being recognized for his acts of kindness through this program.

Texas Children’s wants to continue to recognize those who take great pride in the work they do and encourages patients, families and employees to catch someone who is making a difference.

To nominate a colleague, Caught You Caring boxes and cards can be found across the Texas Children’s hospital system for patients and families to fill out. Employees can fill out a Caught You Caring form on Connect. Cards and online submissions will be distributed to leaders for staff recognition.

For the next week, Connect will feature a series of Caught You Caring videos spotlighting several of our employees who have gone above and beyond their role in the care of our patients and their families.

To see the rest of the series, click on the links below.

Heather Eppleheimer
Keith Thomas
Donald Wilkins

October 24, 2017

Pediatric plastic surgeon Dr. Edward Buchanan has published his third children’s book in a series called the Mental Ninja Series.

The first two books of the series, “The Adventures of the Prickly Pear and the Happy Hoglet: Beginning the Journey of the Mental Ninja” and “Pit Bully: The Mental Ninja Awakens,” introduce readers to a world of characters focused on understanding themselves, their feeling and the control they have over their emotions.

In “The Tale of Fenny Fox: The Mental Ninja Emerges,” the journey continues, with the introduction to more characters and a message about the beauty of differences and the importance those differences play in people’s lives.

For more information about Buchanan’s book series, click here.