June 24, 2014

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Q&A: Annette Gabonay Guzman, April – June 2014 Leader

Your name, title and department. How long have you worked here?
Annette Gabonay Guzman, manager of Therapy Department at Texas Children’s Health Centers – Sugar Land. I have been the manager for seven years and have been a Texas Children’s Hospital employee for nine years.

What month are you Super Star for?
April-June 2014

Tell us how you found out you won a Super Star award.
I walked into a “Health Center concerns” meeting only to find out that it was a surprise meeting for me to let me know that I was awarded Super Star Leader.

What does it mean to be recognized for the hard work you do?
I feel appreciated and valued for the work that I do. It is a great honor to be recognized for it by my peers.

What do you think makes someone at Texas Children’s a super star?
I think that being able to guide, inspire and encourage others to grow and learn and having the ability to set an example and be followed makes someone at Texas Children’s a Super Star Leader.

What is your motivation for going above and beyond every day at work?
The patients and their families are my motivation for going above and beyond every day at work. I want to provide excellent customer service, and I strive for the Therapy Department to provide the best care possible.

What is the best thing about working at Texas Children’s?
The best thing about working at Texas Children’s is working with my team of employees in the Therapy Department. They work very hard, have great collaboration and make work fun for the team and for all of the patients.

Anything else you want to share?
I am very thankful and humbled to have been given the Super Star Leader award, and I greatly appreciate it.

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One of the greatest joys in my life is helping couples achieve their dream of having a baby. My career has been dedicated to helping advance our medical understanding of infertility and treating couples with the most complex fertility issues.

To help carry out this mission, I am honored to officially announce the opening of The Family Fertility Center, our new state-of-the-art lab and in vitro fertilization (IVF) clinic located on the third floor behind the gift shop at Texas Children’s Pavilion for Women.

The Family Fertility Center has been a vision of mine for many years now. Throughout my career, I’ve helped design two other labs, one of which has demonstrated world-class scientific achievement, but I can proudly say that due to advancements in our field, this is the best facility. The Family Fertility Center has only been possible because Texas Children’s Hospital approached this new facility in the same way it approaches every new program, to make it among the very best in the United States. To accomplish this, we utilized the expertise of world-renowned consultants and assembled a nationally prominent team to assist in the design and implementation of our lab. What many couples may not be aware of when selecting an IVF clinic is that the technology, embryologists and equipment in the lab are important components to helping would-be parents achieve their dream.

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Our new lab has the latest state-of-the-art equipment, including the EmbryoScope, an embryo monitoring system that provides continuous moving time-lapse images of embryos as they grow. This technology allows us to identify the healthiest embryo to transfer to the patient, which has been shown to improve IVF success. We are the first in Houston to offer this technology and are among the early adopters in the United States. We also have micro-incubators that are equipped with fiber-optic, real-time pH monitoring to protect the quality of the embryo environment.

Providing the highest level of patient comfort and safety is very important to us at Texas Children’s, so another unique aspect of our IVF clinic is that our team is comprised of highly-skilled obstetric anesthesiologists and nurse anesthetists. Each patient discusses their pain management options with someone from the anesthesiology team before they undergo their procedure. We offer the full scope of anesthesiology services, from sedation to general anesthesia. Offering this level of coordinated care is a game-changer and an important part of the patient experience in our clinic.

We are also working in partnership with The University of Texas MD Anderson Cancer Center to provide young women facing cancer the option of preserving their fertility before they undergo cancer treatments. After a devastating diagnosis like cancer, many women fear that they can never have children since treatments like chemotherapy, radiation and surgery can affect fertility. We counsel these women before their treatment begins to discuss their options and offer them the chance to one day have a child of their own.

Fifty percent of patients who seek treatment at our facility are Texas Children’s Hospital employees. Full-time Texas Children’s employees receive up to $20,000 in fertility benefits, which includes medication and additional IVF cycles if necessary.

I’m looking forward to offering the latest and most advanced fertility treatments available in our new state-of-the-art facility at Texas Children’s Pavilion for Women. Building families is what our mission is all about.

Click here to learn more about The Family Fertility Center at Texas Children’s Pavilion for Women. Click here to take a video tour.

By Dr. William Gibbons

June 17, 2014

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What will I be when I grow up? As a young inquisitive child, you’ve probably asked yourself this question numerous times. But, what are the chances of choosing the same career path and working at the same hospital as your father?

Just ask Dr. Jill Roth and Dr. Joey Spinner, whose fathers are long time, well-respected physicians at Texas Children’s. In this video spotlight, Jill and Joey share fond memories of their fathers and express gratitude for the guidance and encouragement they received from their biggest supporters.

Just like their fathers, Dr. Jill Roth and Dr. Joey Spinner share a passion for helping children. So, it was no shock, when these young physicians decided to pursue a career in pediatric medicine.

“I always knew that I would pursue a career as a doctor, even as young as I can remember,” said Dr. Joey Spinner, chief pediatric resident at Texas Children’s.

“As early as middle school, Joey frequently talked about becoming a doctor and he’d always ask questions about what we did,” said Joey’s father, Dr. Stanley Spinner, chief medical officer at Texas Children’s Pediatrics.

Joey recalls one particular moment when he accompanied his father on hospital rounds when he was just a toddler.

“On a couple of Saturday and Sunday mornings, he would take me with him to the hospital to make rounds on infants in the well-baby nursery. I’d get up on my tip toes to stare over the ledge through the window to see him examining babies.”

As years went by, it didn’t surprise his father when Joey applied to medical schools. He ended up attending his number one choice, Baylor College of Medicine, where he received an academic scholarship.

“I never pushed him to go into pediatrics,” said Dr. Spinner. “I just said whatever you do, be sure you love it, because if you love it, you will succeed.”

Just like Dr. Joey Spinner, Dr. Jill Roth followed in her father’s footsteps. She knew at the ripe young age of four, that she wanted to be a doctor.

“I wanted to be a doctor for as young as I can remember,” said Dr. Jill Roth, who recently completed her position as chief pediatric resident at Texas Children’s. “So, when people would ask me when my interest started, I’d say about 4 years old.”

“From the moment she was able to verbalize, she showed an interest in medicine,” said her father, Dr. David Roth, chief of Urology at Texas Children’s.

Dr. Roth remembers his teenage daughter participating in a Texas Children’s program called “Bring Your Daughter to Work Day,” where Jill got her first experience in an operating room.

“I remember dressing up in scrubs and walking around with my dad and having fun at the hospital with him,” recalls Jill. “I think just observing him in the hospital setting and getting to see what his life was like at Texas Children’s made me want to be a doctor.”

After years of rigorous work and training, Jill is pursuing a profession she thoroughly enjoys, and grateful every day for her father’s support.

“He’s just been there for me throughout my whole life, and I am very fortunate to have his support.”

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Imagine being a parent of a child who has a rare and mysterious neurological disorder. You’ve traveled around the globe searching for answers. But, after numerous visits with physicians, the mystery remains unsolved.

What seems like a long, unsuccessful quest for answers suddenly ends with a glimmer of hope thanks to remarkable new discoveries emerging from the Jan and Dan Duncan Neurological Research Institute (NRI) at Texas Children’s.

Under the leadership of Dr. Huda Zoghbi, a Howard Hughes Medical Institute investigator and founding director of the NRI, she and her team have unlocked the genetic and molecular mysteries behind a number of devastating neurological disorders in children with the ultimate goal of developing treatments to improve their quality of life.

The story of Grace Wilsey is a perfect example.

After a lengthy saga of visiting with physicians across the nation searching for answers about their daughter Grace’s condition, the Wilsey family of San Francisco flew to Houston to meet with Dr. Zoghbi, who helped them find the answer to their child’s perplexing condition.

Dr. Zoghbi examined Grace and recommended a new test called whole genome sequencing that was performed at the Baylor College of Medicine Human Genome Sequencing Center. The collaborative effort between Drs. Zoghbi, Richard Gibbs and Matthew Bainbridge helped identify Grace as the second American child in the world diagnosed with NGLY1 deficiency. The test decoded the DNA sequence of her genome to identify the abnormal gene. The technology helps patients and families understand the cause of neurologic diseases, as well as the risk of recurrence.

Grace is one of the only 17 known children worldwide affected by this rare condition, which is characterized by a mutation in the gene coding for N-glycanase 1, an enzyme that is thought to help recycle defective products from a cellular assembly line. Children who lack this enzyme experience varying degrees of movement disorders, suffer from developmental delays, have liver and gastrointestinal problems and cry without producing tears.

“Kristen and I are so grateful to Drs. Zoghbi, Gibbs and Brainbridge for helping us find a diagnosis for Grace and we are committed to funding research efforts that will lead to a more advanced understanding of this disease and potentially a treatment or cure for Grace and other children who are affected,” said Matt Wilsey, Grace’s father.

Grace’s rare neurological disorder has inspired the Wilsey family to fund researchers at the NRI and the Department of Molecular & Human Genetics at Baylor College of Medicine to study and develop treatments for children with NGLY1 deficiency.

“There is nothing more noble than doing research to help patients,” said Dr. Zoghbi. “Although we have a way to go in the biomedical sciences to really improve the lives of patients with neurological diseases, we are making significant progress.”

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By Veronica Love

I remember the birth of my daughter, Logan Love, as if it were yesterday. Our little girl, almost 5 months old now, arrived two weeks early on January 30, 2014. Logan’s grand arrival was extra special for our family as she was born about three years after my triumphant battle against breast cancer.

Here’s a little rewind for those of you who may not be familiar with my story. When my son, Declan, was two and a half years old, I was diagnosed with ductal carcinoma in situ (DCIS) or cancer in the milk ducts. Hearing the “C” word was a tough pill to swallow. For those of us who have battled cancer, we all know how it feels when you find out your diagnosis and what surgery entails (scared to death).

Luckily, my cancer was caught early and it didn’t spread. It took two surgeries including a bilateral mastectomy to remove the cancerous cells along with radiation treatment to keep them from coming back. Through it all, I was so fortunate that I didn’t have to undergo chemotherapy because my husband, Justin, and I still wanted to have more children.

The road to recovery was a slow, bumpy one. Radiation completely zapped my energy and left burns on my skin. I couldn’t hug my son as much as I wanted to because the burns on my fragile body caused too much pain. I spent most of my days in tears. It was by far one of the lowest points in my life. Looking back now, my recovery is nothing short than a miracle. Yes, I can confidently say, “I survived this bump in the road called cancer.”

Fast forward three years later, we are the proud parents of a beautiful, healthy baby girl named Logan who was born at the Pavilion for Women. We absolutely adore her to pieces and so does her big brother, Declan, who is now 6 years old. She has brought so much joy to our family.

Logan is truly a miracle. After completing my surgeries and radiation treatments in 2011, we were a little apprehensive that I would even get pregnant. Our oncologist recommended we wait two years after the radiation treatments to even try. To our surprise, we were pregnant with baby #2, or so we thought.

Our excitement quickly turned into sadness when we found out it was an ectopic pregnancy and not viable. With the immense pain I felt from the loss, I wasn’t sure I would be emotionally ready to try again. Half a year flew by and my husband and I decided it was time to take a chance and be grateful no matter what happened knowing we already had a beautiful son.

Today, we are the proud parents of two wonderful, healthy children. We are truly blessed.

Here’s the point of my story. Despite the challenges we may face on this journey called life, and no matter how bumpy and twisted the road may be, we must always stay positive. Yes, I know it’s easier said than done, but trust me on this.

Every challenge you encounter only makes you stronger, and sometimes wonderful things happen at the end of it all.

June 10, 2014

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U.S.News and World Report released its 2014-2015 Best Children’s Hospitals list today, and Texas Children’s Hospital maintained the no. 4 spot among the 183 children’s hospitals surveyed by the publication. Also, Texas Children’s once again is listed on the Honor Roll, which recognizes hospitals with top 10 rankings in at least three specialties.

“We are thrilled that U.S.News continually recognizes our hospital as one of the best children’s hospitals in the country,” said Texas Children’s President and CEO Mark A. Wallace. “These results are a testament to our organization’s focus on quality and safety and the dedication of our staff and employees, and it’s just another indication of what we all have known for some time: that we are doing tremendous work here at Texas Children’s.”

U.S.News annually ranks the top 50 pediatric centers in 10 specialty areas. In the 2014-15 rankings, U.S.News surveyed 183 pediatric centers to obtain clinical data in 10 specialties. Eighty-nine hospitals ranked in at least one specialty, and 10 hospitals were named to the Honor Roll below:

Ranking Hospital Points Specialties in top 10
1 Boston Children’s Hospital 20 10
1 Children’s Hospital of Philadelphia 20 10
3 Cincinnati Children’s Hospital Medical Center 15 9
4 Texas Children’s Hospital, Houston 14 9
5 Children’s Hospital Los Angeles 8 6
6 Children’s Hospital Colorado, Aurora 7 5
7 Nationwide Children’s Hospital, Columbus, Ohio 6 6
8 Ann and Robert H. Lurie Children’s Hospital of Chicago 6 4
9 Children’s Hospital of Pittsburgh of UPMC 5 5
10 Johns Hopkins Children’s Center, Baltimore 4 3

The 10 children’s hospitals on the 2014-15 Honor Roll ranked at or near the top in three or more specialties. The order is by total points. If a hospital ranked among the highest 5 percent in a specialty, it received 2 points, and if a hospital ranked in the next 5 percent, it received 1 point. Boston Children’s Hospital and Children’s Hospital of Philadelphia again tied for the top spot. Texas Children’s is separated from the no. 3 position by a single point. This year’s ranking demonstrates some significant gains among several Texas Children’s services. Here are a few highlights:

  • 7 services improved in the rankings
  • 9 services scored in the top 10 (compared to 6 in 2013)
  • 6 services were ranked among the top 5 (compared to 3 in 2013)

“Texas Children’s results on this year’s survey reflect the diligent efforts of the steering committee we formed last year to focus on the U.S.News survey,” Wallace said. “The process of compiling and refining our data is an ongoing challenge, which will continue to improve under the excellent leadership of Angelo Giardino, Tom Luerssen, Mary Jo Andre, Terri Brown and Colleen Jones.”

Texas Children’s made these notable gains amid several changes to this year’s survey. This year, the weight of the reputational score decreased from 25 percent to 16.7 percent, and the best practices and infection prevention rate both increased in weight, from 4.2 percent to 8.3 percent. Also, two additional outcomes were scored in neonatology, and one additional outcome was scored in orthopedics and gastroenterology/GI surgery. Five-sixths of each hospital’s score relied on patient outcomes and the care-related resources each hospital makes available. The remaining one-sixth of the score is derived from a survey of 450 pediatric specialists and subspecialists in each specialty over three years. The physicians were asked where they would send the sickest children in their specialty, setting aside location and expense.

Texas Children’s, working closely with academic partner Baylor College of Medicine, continues to pioneer advancements in pediatric healthcare and earns the U.S.News honor roll distinction by being ranked among America’s best in:

  • #4 Cancer
  • #2 Cardiology & heart surgery
  • #5 Gastroenterology (digestive disorders)
  • #6 Neurology & neurosurgery
  • #2 Neonatology
  • #4 Nephrology (kidney disorders)
  • #4 Pulmonology
  • #7 Urology
  • #8 Diabetes & endocrinology
  • #34 Orthopedics

“Our high rankings demonstrate the commitment we have to achieving quality outcomes, tracking those outcomes and using them to markedly improve the care we deliver,” said Texas Children’s Surgeon-in-Chief Dr. Charles D. Fraser Jr.

This year’s methodology reflects a number of improvements that better differentiate hospitals based on outcomes, best practices and infection prevention. Texas Children’s Physician-in-Chief Dr. Mark W. Kline said the results are a reflection of the work of a gifted, dedicated staff.

“Texas Children’s has more pediatricians and pediatric subspecialists than any other hospital in the world,” Kline said. “But more importantly, we have many of the world’s most talented and dedicated physicians, educators, scientists, nurses and other health professionals, and working together, our team is driving innovation and advancement in pediatric health care. I’m proud of their commitment.”

The 2014-15 edition of Best Children’s Hospitals is available online at www.usnews.com/childrenshospitals.

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Dr. Daniel Penny, chief of Cardiology at Texas Children’s Hospital and section head and professor of Pediatrics-Cardiology at Baylor College of Medicine, was recently presented the 2014 University College Cork (UCC) Medical School Medal. The award ceremony took place at Penny’s alma mater in Ireland on May 28.

The award, established in 2001, was created to honor those who have made exceptional contributions to medicine and society. Penny was chosen as this year’s recipient based on his sustained and excellent track record in pediatrics and pediatric cardiology; in leadership and expertise at an international level in academic medicine; in his support and inspiration for generations of medical students and trainees; and his work in establishing links between UCC and Texas Children’s.

“I am truly honored to receive this year’s UCC Medical School Medal,” said Penny. “It is a privilege to have the opportunity to have worked, and continue to work, in hospitals throughout my career which are leading the way in improving the health and well-being of children and families across the globe.”

Penny was born in Cork, Ireland, where he completed his medical degree at University College Cork, The National University of Ireland. He trained and practiced at top pediatric institutions, such as The Great Ormond Street Hospital in London and The Royal Children’s Hospital in Melbourne, Australia, where he served as chief of Cardiology before joining Texas Children’s. Penny also is a founding director of the Australia and New Zealand Children’s Heart Research Centre, a collaborative network for multicenter research across Australia and New Zealand. His research bridges cardiac physiology and clinical studies of congenital heart disease. In 2010 he was awarded his involvement in developing a Cardiovascular Institute in Hue City, Central Vietnam, for which he received the “For People’s Health” Award from the Vietnamese government.