October 7, 2014

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By Veronica Love

Hello everyone. Since I haven’t posted in awhile, I thought I’d squeeze in another blog before 2014 comes to a close. I can’t believe this year is winding down. Before you know it, Thanksgiving will be here, and then Christmas will be right around the corner. I must say, 2014 has been an awesome year full of many blessings. It’s another year of good health for me and my family, following my triumphant battle against breast cancer three years ago.

Perhaps the best blessing of all came earlier this year when I gave birth to our precious daughter, Logan, on January 30, 2014, at Texas Children’s Pavilion for Women. My husband and I were a bit apprehensive about whether I’d be able to conceive after completing my cancer treatments a few years back, but miracles do happen. Logan, who is now eight months old, and her big brother, 6-year-old Declan, absolutely adore each other, and we adore them too!

For many moms-to-be out there, choosing which hospital to deliver your newborn is one of the most important decisions to make. I chose to give birth at the Pavilion, and I couldn’t have planned it any better.

My hospital stay at the Pavilion was truly magnificent. I went for an office visit and ended up staying to have a baby. The atmosphere was so calm and tranquil. I was alone in my labor and delivery room for awhile, and then my husband and parents showed up just in time for the big show! The birth of my daughter happened really fast. I told the nurse that I felt some pressure and she went to check and said, “Oh, that’s hair!” She promptly summoned the physician on-call, and a few pushes later, I delivered our precious little girl.

For new moms-to-be, figuring out what to pack in your hospital bag days or weeks before your delivery date can be a huge task. I’ve learned putting together a checklist in advance will make things a lot easier.

Here are a couple of things that helped me prepare for my Pavilion stay:
1. Zipper front robes. Two should be fine.
2. Two pairs of warm, grippy socks
3. Big comfy undies. They do have some there, but they didn’t fit me well.
4. Chapstick
5. Reading material while waiting for baby to arrive
6. Hair ties, clips, and headband
7. Your favorite scented soap and lotion. The Pavilion provides this, but I like my favorite scent to help stay calm.
8. An open mind. You can plan all you want but the truth is, it’s not up to you. So, just relax and let it happen.
9. Your questions. Don’t be afraid to ask questions. No one has all the answers even if you have done this before. You can let everyone know gently that you’re the mommy here and you call the shots.
10. Your confidence. You do fantastic work and this will be no different.

October 3, 2014

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On October 4, 1989, a bright and ambitious 36-year-old young man walked through the front doors of Texas Children’s Hospital into a building that was just a few stories tall and envisioned something much bigger.

This was Mark A. Wallace’s first day as President and Chief Executive Officer at Texas Children’s Hospital. Wallace had been the senior vice president of The Methodist Hospital before he joined the 1,000 or so physicians, staff and employees at Texas Children’s Hospital. No one suspected this young man would significantly change the history of the hospital for the next two-and-a-half decades.

That one-building hospital that greeted Wallace when he arrived 25 years ago is now an impressively comprehensive campus spread out among several buildings in the Texas Medical Center, a second campus in West Houston, a third campus under construction in The Woodlands, 49 pediatric primary care practices, health centers, the Neurological Research Institute, The Center for Children and Women and Texas Children’s Pavilion for Women. And those 1,000 employees have grown to more than 10,000 in 2014.

“The face of Texas Children’s healthcare has changed tremendously since he’s been here,” said Jackie Ward, assistant vice president of the Cancer Center. “It’s not just bricks and mortar, it’s the programs we’ve implemented for every child, locally, regionally, nationally, and internationally. We have established a portfolio of healthcare access for all of these children and now women.”

Despite the growth, Wallace still walks the hallways like it’s a small hospital, stopping to talk to everyone who comes in his path. His powerful voice is typically heard before he’s seen. He is the embodiment of passion for the mission, making sure to interact with patient families as well as employees.

The early years

When Wallace began his journey with the organization, the hospital was just 35 years old and still in its infancy. Having just separated from St. Luke’s, it was in need of a leader who would help shape its growth and distinguish it amongst other leading children’s hospitals who had the historical advantage of being a century older. His work began immediately.

With Wallace at the helm, Texas Children’s Hospital completed the renovations of the original building, Abercrombie, and began construction of the Clinical Care Center and West Tower. These two additions made Texas Children’s the largest freestanding pediatric hospital in the U.S.

Senior Vice President of Human Resources Linda Aldred joined the organization just one year before Wallace and has seen the tremendous growth under his leadership.

“He doesn’t just come to work every day,” Aldred said. “He comes with the intent to do something profound every day.”

Throughout the 90s the hospital began to strengthen its position as a leader in children’s health care, taking on milestone cases and establishing Texas Children’s Health Plan, the nation’s first pediatric health maintenance organization.

Overcoming challenges

Wallace’s time wasn’t without its difficulties. In 2001, Tropical Storm Allison brought heavy flooding to the region and devastated much of southeast Texas, including Houston, which was hardest hit. The Texas Medical Center saw some of the worst of the storm’s destruction. The dedicated employees at Texas Children’s Hospital were tasked with caring for patients within the hospital and also took on patients from other hospitals that had suffered storm damage.

For Aldred, this difficult time was a shining moment in Wallace’s leadership. After meeting with his leadership team and staff to ensure the situation was under control, Aldred said his next remarks are what stand out to her even now.

“He turned and looked at his leadership team, and, without hesitating, said, ‘Now, let’s take care of the people who were here taking care of our patients. Let’s see what they lost and what we can do for them. And how we help every single one of them,” Aldred said. “Within three days, we had raised more than $200,000. We were a much smaller organization then, but we raised a lot of money, we built a network of caring, we built a network of help.

“People helped people tear their homes down, get rides to work and provided basic life needs for them. I’ll always remember that defining moment when he thought about the hospital, but he never stopped thinking about the people who worked here.”

Positive momentum

The organization’s growth continued with the $1.5 billion Vision 2010 expansion which included the Heal Sick Children campaign which raised $500 million toward supporting the hospital’s priorities. The project involved the expansion of the Feigin Center, the construction of Texas Children’s Pavilion for Women, Texas Children’s Hospital West Campus, and the Jan and Dan Duncan Neurological Research Institute. Vision 2010 marked an unprecedented period of growth for the organization, which would continue its exceptional care of children and would expand its care to women.

“Mark is truly a catalyst leader,” said 2014 Catalyst Leader of the Year Dr. Oluyinka Olutoye, who is also co-director of Texas Children’s Fetal Center. “If you look at the word catalyst, it refers to a person or thing that actually transforms the environment or the reaction that it’s involved in. When you look at the transformative effect Mark Wallace has had on Texas Children’s, there is no question he’s a catalyst here.”

Ward saw Wallace as a mentor and an inspiration to many of his leaders and his entire workforce throughout Vision 2010.

“I saw him through the eyes of my mother, who worked here for 36 years, and now I have the privilege of knowing him as my own leader,” Ward said. “To know him is to love him as your leader because of his passion for what he does and his passion for health care.”

On the horizon

With yet another community hospital set to open in The Woodlands in 2017, the organization continues to see great success in providing the right care at the right place. Wallace’s dedication continues to lead the way for better health care for children and women throughout the global community and has kept Texas Children’s amongst the best places to work according to the Houston Business Journal.

“I look forward to being on his team and watching the evolution continue,” said Dr. Charles Hankins, chief medical officer of West Campus and Texas Children’s Hospital The Woodlands. “Here’s to 25 more years.”

September 30, 2014

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By Dr. Carol Baker, vaccine and pediatric infectious disease specialist

As we prepare for cold and influenza (flu) season, which typically begins in late November or early December, getting a flu vaccine is the best way to protect yourself and your loved ones. But what if you are pregnant? Should you still get vaccinated?

The answer is simple: YES. Pregnant women should get vaccinated against the flu.

Pregnant women, especially in the second and third trimester, are more likely to have complications from flu, rarely even death. In fact, the flu can lead to serious problems for an unborn baby, including premature labor and delivery. Getting vaccinated protects against these bad outcomes and also protects the baby against flu until the baby first can be vaccinated at age six months.

The best way to protect yourself and your unborn child from influenza is to get vaccinated. And it’s important to remember that pregnant women should only get the flu shot, not the nasal spray, known as FluMist. (FluMist contains live virus and should not be given to pregnant women because it may not be safe.) The flu shot is available at most doctors’ offices and all local pharmacies.

It takes up to two weeks for inactivated influenza vaccine to become fully effective. So the best time to get this vaccine is as soon as it is available. Even a late vaccination can be beneficial because the flu season can last through March and April.

According the Center for Disease Control and Prevention (CDC), vaccination helps protect women during pregnancy and their babies for up to six months after they are born. One study showed that giving flu vaccine to pregnant women was 92 percent effective in preventing hospitalization of infants for flu.

As a pediatric infectious disease specialist and executive director of the Center for Vaccine Awareness and Research at Texas Children’s Hospital, I am dedicated to finding the best ways to stop children and their parents from getting preventable diseases. I know the dangers the flu can pose to pregnant women and their unborn children. So I urge you to disregard the myths and misperceptions that often circulate about the flu vaccine. The flu shot cannot cause a person to develop influenza because the virus in the vaccine has been killed.

During the 2013-14 flu season, about half of pregnant women protected themselves and their babies from flu by getting a flu shot. This is a significant progress. But almost half of pregnant women and their babies still remain unprotected from influenza. As I noted above, the flu shot is the single best way protect yourself and your family from the flu. Make sure to protect yourself and your baby – get vaccinated.

This website will help you find a location near you where you can get vaccinated. For more information about pregnant women and the flu, visit the CDC or download the PDF below by visiting here.

September 24, 2014

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News of Enterovirus D68 (EV-D68) cases have increased in the media in recent weeks, just of many of us are bracing for the onset of cold and flu season. Texas Children’s leaders encourage staff and employees to arm themselves with the facts about EV-D68.

The issue isn’t the actual virus, rather it’s the severity of the person’s illness who may have it. Patients with underlying pulmonary disease are at increased risk of significant illness from EV-D68, said Dr. Jeffery Starke, Texas Children’s director of Infection Control. However, most children infected with the virus only have mild illness that is indistinguishable from other respiratory infections.

“It is not necessary to take children to the emergency room or rush to the pediatrician’s office,” Starke said. “Only children with significant symptoms need to seek care.”

Significant symptoms include intense wheezing, difficulty breathing or uncontrollable coughing.

Here are the other things you need to know about the rare respiratory illness that has cropped up this year in several states across the country:

What is the current situation?
For the first time since 2012, the Centers for Disease Control and Prevention has confirmed several cases of EV-D68. So far this year, 160 people in 22 states have tested positive for the virus. No deaths attributed to the infection have been documented.

What is EV-D68?
EV-D68 is a rare form of enterovirus that affects the respiratory system. First identified in California in 1962, EV-D68 was rarely seen until 2009, when there were outbreaks in Japan, the Philippines and the Netherlands. Small clusters of cases were identified in the United States around the same time.

Who is at risk?
Infants, children and teenagers are most likely to get infected and become ill since they don’t have an immunity from previous exposures to enteroviruses. The most severe cases tend to involve children with asthma and other preexisting respiratory problems.

What are the symptoms?
Symptoms of EV-D68 are usually mild, barely distinguishable from a common cold. However, a small percentage of children develop intense wheezing, difficulty breathing or uncontrollable coughing.

Are there any treatments?
There is no vaccine to prevent EV-D68 and no drug to attack it. Parents can treat the pain and achiness with over-the-counter medications, and for more serious cases doctors have used albuterol and supplemental oxygen.

How is EV-D68 transmitted?
Like most other respiratory viruses, EV-D68 is transmitted through an infected person’s saliva, nasal mucus or sputum.

How can I avoid getting the virus?
You should:

  • Wash your hands often
  • Avoid touching your eyes, nose and mouth with unwashed hands
  • Avoid close contact with people who are sick
  • Disinfect frequently touched surfaces

Is there anything else I should do?
Get your flu vaccine. Although it won’t help ward off EV-D68, it will help medical staff diagnose you if you get a severe respiratory infection.

For more information
For more information about EV-D68, click here. To find out how to get your flu vaccine, click here.

September 23, 2014

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By Lindsey Gooding

I never thought I’d be able to forget the exhaustion that accompanied my son, William’s, four-week stay in the Neonatal Intensive Care Unit (NICU) at Texas Children’s Pavilion for Women in April 2012. William has reached so many exciting milestones since he left the NICU two years ago.

The progress William has made between his first and second birthday still amazes me. At his first birthday, he wasn’t walking, he had no teeth and he had no interest in solid food. By his second birthday, he was a walking, talking, food-loving little toddler who finally had seven teeth.

I’d be lying if I said I didn’t worry about him not being on the growth charts for so long and his speech being delayed compared to others his age. When William turned two years old, I had him evaluated by a speech therapist because he wasn’t saying 50 words. They told me what I had known deep down in my heart. He didn’t qualify. He was learning a little more every day. William was doing things on his own timeline and that’s okay.

William is his own person. He was a preemie who has made remarkable progress. All we can do is love him, teach him and encourage him. He has met all his milestones. A few were several months behind but he’s done it and that’s what matters. He can kick a ball, he repeats things he hears, he knows all his body parts, he plays make-believe and he’s more independent with each day that passes. We couldn’t be more pleased with his progress.

Although a NICU stay can be exhausting, there were several things that made it an awesome, positive experience. The car seat education program was priceless. I got to have a little baby for longer than most. The nurses were so informative and helped me perfect my “mom skills.” Gordon and I enjoyed going out to dinner a couple of times which most new parents don’t get to do (and we had the best babysitters in town!). Since William received donor breast milk while in the NICU, I knew I had to give back by donating myself!

Gordon and I would love to add another little Gooding into our family. If we are ever blessed enough to welcome another baby into the world, we will be more prepared for a NICU stay. It won’t be easy but being a parent never is. Every NICU family has a different story. Some are harder than others. I try to always put things into perspective. Find the silver lining. My motto is: You have to embrace all the days, good and bad. In their own unique way they are very precious moments. It may not be what you envisioned but sometimes that’s okay.

September 16, 2014

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By Rosanne Moore, Bump Watch Editor​

Putting together a diaper bag for a baby may feel like packing for a weeklong vacation! How many diapers do I need? Is one pacifier enough? What other baby gear essentials should I take with me?

For new mothers, leaving the house takes on a whole new meaning. Preparation is key, even if your out-of-the-house excursion means running a few errands with your infant (or infants, in the case of twins!) in tow.

To help make the process easier for new parents, we asked several Bump Watch mothers to share their tips on what to pack in their newborn’s diaper bag. After all, you need to be prepared for any surprises.

Top 15 list of diaper bag essentials:
1. Diapers (at least two per child) and plenty of wipes
2. Boogie wipes (unscented) for the nose and face
3. Travel changing pad
4. Munchkin diaper disposal bags, like this one. They are scented which is a Godsend when baby has a dirty diaper.
5. Small tube of Triple Paste diaper rash cream
6. Pacifier and pacifier sanitizing wipes
7. A favorite teether/toy for baby (such as a Sophie or a rattle)
8. Extra change of clothes in case baby has a blowout
9. BabyGanics stain stick (in case baby stains clothing, you can pre-treat it right away)
10. Blanket or “hooter hider” cover for nursing
11. Pre-measured formula/water if you are formula feeding so you can prepare a new bottle on the go
12. Lightweight blanket for baby
13. Extra bib
14. Burp cloth for spit ups
15. Ziplock bag (so that if baby soils clothing, you can keep it contained away from the rest of your things)

September 9, 2014

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Christian Spear puts on her headphones and closes her eyes as she stands next to a purple microphone. The former American Idol contestant is not on the stage performing in front of thousands, and she’s not competing in a television program anymore, but she is performing with all of the same passion. She is singing from the heart inside the Purple Songs Can Fly studio at Texas Children’s Cancer Center. It’s a song she wrote and composed along with Anita Kruse, founder and executive director of Purple Songs Can Fly. The program gives patients in the cancer center the chance to compose their own songs and Spear has signed on to be a songwriter for the year, helping children with their tunes.

“Coming back to Texas Children’s has been nothing short of a full-circle experience for me,” said Spear. “It is always so humbling to be amongst children and families who are enduring the very things I endured years ago.”

Spear is a 15 year cancer survivor. She received her treatment right here at this very hospital, and now she is proud to be here hoping to inspire each child she meets. Today, her personal experience and the kids’ battles have inspired the lyrics to her latest song, No One Fights Alone. The song is about uniting in the fight against cancer and it’s dedicated to children at Texas Children’s Cancer Center and beyond. It is in honor of Childhood Cancer Awareness Month. When she opens her mouth and the song lyrics spill out, the emotions are palpable.

“Cancer can’t steal away your joy or ever dim your light,” Spear sings with raw emotion. “Cancer can’t break your spirit or take away your will to fight.”

Take action! Share the video on social media and use the hashtag #NoOneFightsAlone to share your personal stories.

She said having survived cancer inspires so many areas of her life, especially her songwriting.

“I was able to grow with a completely new outlook on life,” said Spear. “I try to find joy in everything around me and it’s inspired my songs to always have a message of hope.”

“Because Christian is a childhood cancer survivor herself, she embodies the spirit of hope, courage, resilience, creativity, connection and love that we all seek,” said Kruse.

Spear’s time at the hospital is spent with the children, and it’s clear she relates to them on a different level. Being a survivor gives her a special connection with those who are still fighting the disease. Her former physician, Dr. ZoAnn Dryer, is among her many fans.

“Stories like Christian’s are what help all of us get up in the morning with a smile on our faces and literally a song, usually hers, in our hearts,” said Dryer. “Christian is a blessing to all, and I am so very proud to introduce her to my patients undergoing therapy so they can truly begin to believe there is light at the end of the ‘cancer tunnel.’”

Spear recently sang her song at a ribbon-tying ceremony which brought together patients and staff to tie more than 600 gold ribbons, each signifying one patient diagnosed with cancer at the cancer center over the last year. Nationally, more than 15,000 children will be diagnosed in one year. The cancer center also provides supportive care to children with cancer in five African counties: Botswana, Uganda, Malawi, Tanzania and Swaziland.

“Our patients serve as our inspiration to provide the best quality medical and psychosocial care, conduct state-of-the art research and train our future leaders in the field,” said Dr. David Poplack, chief of Texas Children’s Cancer Center.

The ribbons will be on display all month at the children’s playground on the first floor of Abercrombie Building. It’s a small reminder of the universal message that no one fights alone.

View photos from the event

“‘No One Fights Alone’ means whether I’m battling a disease, or just having a bad day, I will never be without the love and support of my friends and family,” said Spear. “That’s what I hope to leave each listener with, love and support to bring them joy.”