We are looking back to the 1960’s this month and invite you to share your favorite Texas Children’s memories. Read more
April 1, 2014
When my husband and I first heard the news that our unborn daughter had CDH (congenital diaphragmatic hernia), time stood still in what seemed like a dense fog. As many would do, I ran to internet sites like Google and Wikipedia to find out more about this sometimes fatal abnormality. I was inundated with medical terminology and survival statistics. I was able to create a huge binder with all of the research I had done and carry that stack of documents with me to every appointment we had. Needless to say, I thought I was prepared for the various outcomes we could experience after our little girl was born.
On November 28th, 2010, Brooklyn Elizabeth Hales was born one day shy of her Father’s birthday and one month short of her due date. She was immediately intubated and taken to the NICU III in West Tower. For the next few weeks she struggled with stability and even ended up on ECMO. There were many dark moments in those first weeks of her life, but like I said before, we knew what we were up against. We knew that the ugly road of CDH was not an easy one, and we had prepared our hearts for heartbreak.
What we hadn’t planned for, and what never even came to mind, was how we would cope with “NICU life.” In the four months of Brooklyn’s hospital stay, I spent majority of my time at her bedside, walking the halls of West Tower, or trying to catch some rest in the Ronald McDonald House on the fourth floor. I lived, breathed, and smelled like the NICU. I had a fully organized folder on what Brooklyn could be faced with, but I had an empty hand when it came to information on how to navigate my role as a parent in the NICU. As a parent, you are your child’s most valuable advocate. You have intuition and you will spend the most time with your child. But how do you know which beep means business? Or how do you know when to speak and when to be quiet?
Or… what if my child’s pod mate passes away?
These are all questions and scenarios I had to navigate thru as a first time NICU parent. The one thing I learned over anything else when living in the NICU is that there’s a lot you CAN prepare for, and a lot you CAN’T prepare for.
As an employee of Texas Children’s, I know that we are constantly seeking out opportunities to better our families and their experiences. And as a NICU parent, I am even more excited about the creation of a new resource class available to our parents. A few months ago I had the privilege to brainstorm with the creators of the class, Preparing for Your Newborn’s Hospitalization. The purpose of our meeting was to gain the perspective of a NICU parent and bring up what could have been helpful prior to that “NICU life.” This class, with the help of its leaders and speakers, will better prepare those parents who are awaiting their newborn’s stay. I feel that had this been at my disposal prior to Brooklyn’s birth, I would have been one of the first to sign up. I believe it will be a tremendous value to our parents and great addition to the many great classes provided by the Pavilion for Women.
To sign up for “Parenting your hospitalized baby” or any of the other classes available to Pavilion patients, visit: http://women.texaschildrens.org/Patient-Education/
March 25, 2014
March 21, 2013 was the day our relationship with Texas Children’s Hospital changed. My husband, Matt, and I are both employees at the hospital, so Texas Children’s is very near and dear to us. We have enjoyed our many years serving our patients and working with the wonderful employees of this organization. I have been a nurse here for 16 years and my husband has worked here for 13 years, currently in the Texas Children’s Heart Center. We’ve spent so many days throughout the years walking the halls of Texas Children’s doing what we love, but on March 21 we realized we were going to be experiencing the hospital as parents, not just as employees.
Luke, our unborn son had been diagnosed with a congenital heart defect – coarctation of the aorta. The fetal cardiac imaging team at Texas Children’s detected this defect through a fetal echocardiogram. This enabled them to see the function of Luke’s tiny heart, at just 22 weeks gestation! Although in disbelief, we were thankful for this early detection as it was critical for many reasons. Not only did it help the medical teams plan for Luke’s delivery, but it also allowed Matt and me to ask questions and fully understand the defect and how it might impact him. Even though we work in health care, we had so many questions and were increasingly anxious about the health of our son. Between our wonderful OB, Dr. Kimberly Bobo, at Texas Children’s Pavilion for Women, and the Heart Center and Fetal Center teams, we felt less anxious and certainly very prepared for the possibilities. We were comforted by the countless support staff and multidisciplinary experts we worked with for the months leading up to Luke’s birth. We were never treated as if our questions and concerns were naive and always felt as if each person we encountered was giving us their full attention and compassion for our situation.
As Luke’s birthdate neared, our excitement, as well as our fears grew – the unknown factors were many, but we knew that his care teams were as prepared as possible to handle any situation. His delivery was uneventful (thank goodness!) and there was a NICU team on hand to start his care immediately. He spent a few days in the NICU being monitored closely. Luckily, he remained stable and after a reassuring echocardiogram, we were sent home. It wasn’t until our one month follow up appointment that we learned the narrowing in his aortic arch had worsened and it was time for surgery.
No parent should ever have to experience their child going through heart surgery and the related recovery. It can be a frightening experience and one that we hope to never have to go through again. That being said, the team of experts at Texas Children’s who cared for Luke is among the best in the country. We found comfort in knowing that this is a very typical day for the surgical and medical teams who cared for Luke as they encounter highly complex cardiac patients on a daily basis and perform high volumes of surgical procedures just like Luke’s frequently. We knew he was in the best hands possible for a positive outcome.
After a very long day of waiting while Luke was in the operating room, we learned his surgery was extremely successful and spent the next several days recovering with him in the cardiovascular intensive care and cardiac acute care units. Luke had an uneventful recovery period so we were able to take him home just a few days after his surgery. Since that time, we have been followed by his cardiologist and Luke is currently a very happy, healthy 7 month old boy.
We are so thankful for the numerous individuals who looked after Luke during this phase of his life and who continue to ensure he remains healthy. One of the reasons Texas Children’s is so remarkable is the sheer number of clinical and technical experts who are involved in the care of just one child. From cardiology, congenital heart surgery, obstetrics, maternal fetal medicine, cardiac imaging, critical care, and acute care, Luke encountered truly inspiring individuals who are experts in the care of children with congenital heart disease. As a parent, it is almost hard to believe that so many experts are available to us to care for our child. As fellow employees, we are proud to be a part of the amazing team at Texas Children’s and know that we are providing this level of care and compassion to all patients and families.
You can learn more about Luke’s journey by watching this video.
Lindsey Gillespie, a Dallas nurse and mom of three young boys, was expecting a routine pregnancy to deliver her fourth child. But during a scheduled ultrasound to determine the gender of the baby, the nurse noticed something odd. After being fully evaluated, doctors suspected placenta percreta, the rarest and most severe form of placenta accreta. When Lindsey could not find a group who routinely treated cases like hers in the Dallas/Ft. Worth area, she eventually transferred her care to Texas Children’s Pavilion for Women in Houston.
And she’s not the only one. The Pavilion for Women has the largest and busiest program in the country for this condition, treating more than 60 cases in the last three years.
“What’s unique to others has now become routine to us,” said Dr. Michael A. Belfort, OB/GYN-in-Chief at Texas Children’s Pavilion for Women. “That strengthens the case for having this type of surgery done by a team that does it all the time and knows how to do it.”
Placenta percreta, the rarest and most severe form of placenta accreta, is a potentially life-threatening condition that can affect any neighboring uterine structure. Placenta percreta (5 percent of all placenta accreta cases) happens when the placenta grows entirely through the uterine wall and attaches to another organ like the bladder. When it involves the urinary bladder, a multidisciplinary approach utilizing a team of physicians and surgeons representing urology, radiology, and obstetrics/gynecology is the key to successful management. Moms who have had previous cesarean deliveries are at an increased risk to developing the condition.
According to the American College of Obstetricians and Gynecologists, in the 1980s placenta accreta affected 1 in 4,000 pregnancies. Today the rate has spiked, affecting 1 in 533 pregnancies – in large part due to the increased number of c-section deliveries.
This year alone, Belfort estimates that Texas Children’s Pavilion for Women will treat about 30-40 patients with placenta percreta, including Lindsey Gillespie. Five patients are currently awaiting surgery.
While Lindsey was at first nervous to leave her home and give birth in Houston, her husband reassured her she was making the right choice, saying “Wow, you couldn’t be at a better place. The hospital you are delivering at is connected to a children’s hospital, so if anything goes wrong it is right there. That is phenomenal!”
On March 14, Belfort led a team of physicians and neonatologists who performed an Indicated preterm Classical Cesarean section followed by Modified radical hysterectomy on Lindsey. She gave birth to a healthy baby girl and pulled through the surgeries without needing a blood transfusion. While the risks were high, Belfort and his staff were confident and well prepared, with a room full of high-risk physicians, neonatologists and a huge supply of blood, should she have needed a transfusion.
“The safest place to have this kind of surgery is in a place where they do it all the time, have a protocol, have a well equipped and practiced team and are comfortable with this issue,” said Belfort.
Texas Children’s Pavilion for Women opened its doors two years ago and has been exceeding expectations ever since. View the photos below and see if you can guess some of the most memorable moments from the last 24 months.
Then scroll to the bottom of the page for the answers
1. What was the official first day of delivering miracles at Texas Children’s Pavilion for Women?
2. Who was the first baby born at the new facility?
3. Why was the miracle bridge lit up on the first day of inpatient services?
4. Who are the famous babies in this picture?
5. How was the Pavilion involved with the March of Dimes?
6. What other service is important to the diverse group of patients who visit the Pavilion?
7. What are some of the in-utero procedures that have been done at the Pavilion?
8. How many babies were born in year one?
9. Where is the hospital’s first community ObGyn office?
10. What did the Hackett family gift fund?
11. What is the use of the DaVinci robot?
12. Who is Baby Audrina?
Answers:
1. Texas Children’s Pavilion for Women leadership broke the ribbon on the brand new hospital on March 23, 2012, the first day of inpatient services was Monday, March 26, 2012.
2. The first baby born at the Pavilion for Women was Brayten Green, born at 8:16 a.m. March 26, 2012.
3. On the first night of delivering miracles, The Miracle Bridge was lit up in blue to celebrate the first baby born at the Pavilion for Women.
4. The “Perkins Pack,” as they came to be known, was the first set of sextuplets born at the Pavilion for Women. They gained national attention with several interviews on network television.
5. As a center dedicated to high risk pregnancies which cares for many premature babies, the Pavilion was the presenting sponsor for March of Dimes March for Babies 2012.
6. The Menopause Clinic is just one of the sought-after features available at the Pavilion that allow us to care for women at every stage of life.
7. Programs for in-utero spina bifida repair, in-utero heart intervention, and in-utero balloon placement for congenital diaphragmatic hernia were all created within the first year.
8. Within the first a year, about 5,000 babies were born at the Pavilion.
9. The first ever ObGyn clinic opened its doors in Pearland bringing the Pavilion’s outpatient services to the Pearland community.
10. The hospital received a $2 million gift to establish the Maureen Hackett Endowed Chair for Reproductive Psychiatry.
11. The new robotics program and the acquisition of the DaVinci robot allows for the use of cutting-edge techniques to help perform complex surgical procedures that are minimally invasive in both the adult and pedi population.
12. Baby Audrina Cardenas was born at the Pavilion with one-third of her heart outside of her chest. A multidisciplinary team of surgeons performed a six hour open-heart surgery where they reconstructed her chest cavity to make space for her heart.
March 18, 2014
For a first time pregnant woman (not calling myself a mom yet) pregnancy is a beautiful thing. Yet, there are things about pregnancy that no one cared to share. They are the mishaps that I shared (unfortunately) with my patient and saint-like husband. Thankfully, it has made our marriage stronger than ever to go through it all together. Here is an inside look at the unexpected journey of the first trimester. The things friends don’t tell you and books don’t explain (or maybe they do and I haven’t read the right ones yet).
I’ve cried through a sad movie or two pre-pregnancy. However nothing warned me about the emotional changes that happen during pregnancy. Let me give you two fun examples.
Example #1: I love cream cheese, even more now that Baby Calderwood loves cream cheese. I could eat it on anything, in a box, with a fox, you name it! Cream cheese (in my household) may be the solution to finding world peace. I was dancing happily, waiting for my toaster to pop out these two golden brown, crispy and crunchy bagel slices – when I danced over to the refrigerator. I opened the door and took my first look… No cream cheese? Don’t panic. The world is still spinning. Let’s thoroughly investigate every shelf and drawer. No cream cheese! It was in this exact moment that the world, as I knew it, came crashing down. My poor husband must have thought a tragic event was taking place, well it was – we didn’t have any cream cheese for my golden, crispy, crunchy bagel. I cannot begin to describe the massive alligator tears that streamed down my face. The inconsolable sobbing and mourning of my dear cream cheese. I was crying so hard – I could barely breathe. My husband stood in the door way of our kitchen, with this stupid smirk on his face and said “Babe – just put some butter on the bagel, we can get some cream cheese in the morning.” That’s when the tears instantly turned to rage. Who did he think he was? The master of bagel making? Without stopping the vocal force in my throat, I let out a “LEAVE ME ALONE.” The screaming sob could be compared to a toddler. I should have thrown myself on the floor for a more dramatic appeal. Hindsight is 20/20. To sum up the story – pregnancy and hormone changes can rear their little heads at any given moment. You must be prepared. In my case, we keep cream cheese stocked like our kitchen is an Einstein Bagel joint.
Example #2: (this one’s for the husbands). Pregnancy can make a woman crazy lovey-dovey. There have been moments when I look at my husband and I could squeeze him so hard, just because I love him so much. He’s my perfection. One evening, while watching TV, we sat side by side on our couch, in our ‘reserved seating.’ He was reading on his iPad, I was flipping back and forth from the Olympics and a Law & Order Marathon. I noticed him out of the corner of my eye, and found myself oogly eyed staring at him. I reached out my hand and sheepishly said “Do you want to hold my hand?” and I gave him my best smile…. His reply… “Not really.” The emotions instantaneously boiled behind my eyeballs and alligator tears shot out like firing missiles. Hysterically, I sobbed and said “All I want to do was hold your hand because I love you and I think you are so special to me and I can’t believe you don’t want to hold my hand and I’m tired and going to bed” – All like that, all in one glorious run on sentence. He stared at me in disbelief and started to nervously giggle. He said, “Oh hun – don’t cry I just didn’t want to hold your hand, I’m reading. Why are you crying?” All I could say between hyperventilating sobs was “BECAUSE I LOVE YOU,” and then, within minutes I was asleep. I am convinced that my husband thinks I am an impersonator who escaped a mental institution. Moral of the story: If your highly emotional pregnant wife wants to hold your hand on the couch. Do it.
So moral of my two fun fact stories? The first trimester brings on a whole new level of sensitivity, tears and sleepiness. Tears that haven’t been produced by my tear ducts since I was 4 years old and I couldn’t get a toy in the checkout line. And naps consistent with a 1 week old or a narcoleptic.
I’m excited to experience this pregnancy and share it with all of you on Bump Watch. I know many of you have had the “Pavilion experience” and I am eager to experience it for myself. Let me know if you have any suggestions for when I get there! For now, let’s see what the second trimester brings!
March 11, 2014
As a pediatric plastic surgeon, Dr. Edward Buchanan has seen his share of ailments in children. What he’s observed throughout the countless cases he’s treated is the best treatment in any case is a positive mental attitude.
That’s the inspiration behind his first children’s book, The Adventures of the Prickly Pear and the Happy Hoglet which was illustrated by his brother, Mathew. Buchanan said the book is about looking beyond the difficulties we each face to spot the silver lining.
The book chronicles two best friends who are met with similar obstacles throughout their day. The difference between how each copes is their individual attitudes in each situation. Buchanan hopes it inspires all Texas Children’s patients as well as other kids to always look on the bright side.
Patients as well as the plastic surgery clinic staff were invited to a book signing and reading by Buchanan at the Pi Beta Phi Patient/Family Library. Each received a signed copy of the book. Dr. Larry Hollier, chief of plastic surgery, purchased 250 copies of the book for patients in the clinic and copies are also available to borrow through the library on 16 West Tower. Buchanan hopes to continue sharing this inspirational message in subsequent books.