September 15, 2015

Every summer, Texas Children’s staff and their patients make the 90-mile trek to Camp for All, a 100-acre, barrier-free recreational facility that enables children with special needs to experience the thrill of camping just like normal kids their age.

“It’s a place where they feel safe and comfortable because everyone is just like them,” said Texas Children’s Neurology Chief Dr. Gary Clark, who is the lead physician at Camp Spike N Wave. “In partnership with the Epilepsy Foundation, we provide the medical infrastructure so children can have a safe camping experience, while doing everything that anybody would do in any other camp.”

Wheelchair bound or not, children engage in a fun-filled week of adrenaline-pumping activities like zip lining, rock wall climbing, swimming, horseback riding, archery, rope courses, basketball, and canoeing in a lake. They build friendships and unleash their independent spirit, while focusing less on their illness or physical disabilities.

Texas Children’s oncologist Dr. ZoAnn Dreyer is the medical director for Camp Periwinkle. She and her staff collaborate with the Periwinkle Foundation to bring more than 185 patients from Texas Children’s Cancer Center to camp each summer.

“Often times, our patients are marked by their cancer,” Dreyer said. “Being in the normal environment can be really tough for them. Here at camp, the playing field is equal for everyone.”

Camps like Camp Periwinkle and Camp Spike N Wave would not be possible without the diligent efforts of Texas Children’s own, Dr. Robert Zeller, chief of the Blue Bird Clinic, who collaborated with other physicians to create Camp for All in 1993.

“I had a patient with epilepsy who couldn’t go to camp because camps wouldn’t accept children with this condition,” Zeller said. “This prompted me to develop a camp for children with medical and physical challenges where they can discover life without barriers. It’s my way of giving back to my patients.”

July 21, 2015

72215HHconference640On July 11, Texas Children’s Hospital and Hope for Hypothalamic Hamartomas hosted an educational conference to empower patients and their families affected by a rare and often devastating brain condition.

Hypothalamic Hamartoma (HH) is a noncancerous tumor of the hypothalamus that causes uncontrollable seizures, early puberty, hormonal imbalances and cognitive and behavioral problems. Seizures usually begin in infancy, most often as frequent, uncontrollable laughing spells (gelastic seizure), before different types of seizures emerge.

Texas Children’s neuroscience team along with Dr. Daniel Curry, Texas Children’s director of pediatric surgical epilepsy and functional neurosurgery, and Dr. Angus Wilfong, medical director of Texas Children’s Comprehensive Epilepsy Program, helped organize the HH Family Conference which featured insightful presentations from 11 experts from across the country who specialize in the diagnosis and treatment of neurological diseases.

The conference provided valuable information about exciting research on the horizon and potential new treatments for HH patients, with the hopes of empowering families and caregivers to make educated treatment decisions for their loved ones.

Several guest speakers from Texas Children’s included Drs. Wilfong, Maria Grosch, Marcia Komlos-Kukreja, Michael Quach, Varina Wolf, and Curry, who delivered a presentation on laser ablation technology, a surgical procedure he and Wilfong helped pioneer to treat seizures in children with epilepsy and HH.

Ranked no. 2 in neurology and neurosurgery by U.S. News & World Report, Texas Children’s is the first hospital in the world to use this real-time MRI-guided thermal imaging and laser technology to destroy brain lesions that cause epilepsy and uncontrollable seizures. Unlike a craniotomy – which removes a larger area of skull bone – the MRI-guided laser probe uses a much smaller pathway through the brain to reach a lesion. This minimally invasive surgery has resulted in promising outcomes for HH patients, with 78 percent of them being able to live seizure-free.

“Several of our families have been treated by this new laser ablation surgical procedure that Drs. Curry and Wilfong have worked hard to perfect on our high-risk patients,” said Lisa Soeby, president of Hope for Hypothalamic Hamartomas. “We are thankful for their dedication and passion for what they do and look forward to partnering with Texas Children’s Hospital in the future.”

In addition to providing informative sessions, the HH Family Conference also offered opportunities for families to meet others like them, who are impacted by this rare but treatable condition.

72215epileptologist640World renowned epileptologist Dr. Helen Cross and two of her colleagues visited Texas Children’s July 9 and July 10 to get more information on the Medtronic Visualase system, which uses real-time MRI-guided thermal imaging and laser technology to destroy lesions in the brain that cause epilepsy and uncontrollable seizures.

This product is not available in Europe, therefore Cross and the other clinicians from Great Ormond Street Hospital for Children are exploring the feasibility of sending some of their patients to Texas Children’s Hospital for treatment.

Cross and Drs. Sophia Varadkar and Martin Tisdall met with representatives from the International Office and later joined neurosurgeon Dr. Daniel Curry and neurologists Drs. Angus Wilfong, Michael Quach and Anne Anderson for a tour of the Magnetoencephalography Lab at the Pavilion for Women, the 12-bed epilepsy monitoring unit and the Blue Bird Clinic for Pediatric Neurology and Neurosurgery. The group also donned scrubs and observed a visualase laser ablation case with Curry and Wilfong, who performed the first of such procedures at Texas Children’s four years ago.

The surgery is performed by first mapping the area of the brain where the lesion is located using magnetic resonance imaging. The catheter is inserted through the skull in the operating room and then the patient is transferred to an MRI unit where the ablation of the lesion is performed. The MRI confirms probe placement in the target, and the magnetic resonance thermal imaging allows the surgeon to see the ablation of the lesion by the laser heat as it happens with an automatic feedback system that shuts the laser off when the heat approaches nearby critical brain structures.

“While we have been successful in curing epilepsy through open cranial surgery for quite some time, the benefits of this new approach in reducing risk and invasiveness while providing instant therapeutic has opened the door for more epilepsy patients to see surgery as a viable option,” Curry said. “We were more than happy to share this information with Helen and her team and look forward to working with them and their patients in the near future.”

June 2, 2015

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On Saturday, May 16, Texas Children’s hosted and participated in the Greater Houston-Galveston Society for Clinical Research Associates (SoCRA) educational seminar, which drew an impressive turnout.

Organized by Neurology Senior Regulatory Affairs Coordinator and SoCRA Chapter Chair Aryn Knight, more than 150 clinical research professionals from several Texas Medical Center institutions attended the conference, which included six hour-long presentations by leaders in the field.

Topics included risk-based trial monitoring, research documentation, study feasibility metrics, ethics of informed consent, emergency versus compassionate use investigational new drug applications and developing clinical research careers.

Neurology Project Manager Christina Talley presented an innovative tool for predicting clinical trial costs and evaluating study feasibility. Neurology Senior Research Coordinator Mariam Pontifes participated in a discussion panel with Knight, Talley and others.

Demand for this conference was incredible, reflective of the fast growth and constant change occurring in the field. As host of this successful conference, Texas Children’s delivered a valuable educational service and reinforced its standing as a leader in clinical research.

March 24, 2015

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Dr. Sunita Misra, a child neurology resident at Texas Children’s, recently received the 2015 Roger and Mary Brumback Sage Award of Excellences for her study on Dravet Syndrome.

Her award-winning study analyzed the quantity and type of medications that are required to stop prolonged seizures in children with Dravet Sydrome, a severe childhood epilepsy syndrome that causes patients to experience dozens or even hundreds of seizures a day.

In her study, Misra and her team also analyzed the triggers and complications resulting from the long seizures, and how many episodes led to emergency room visits or hospitalizations for prolonged seizures.

The Roger and Mary Brumback Sage Award of Excellences is awarded to the recipient of the best junior member presentation at the annual meeting of the Southern Pediatric Neurology Society.

March 10, 2015

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Ten dedicated physicians recently joined Texas Children’s neurology team, which means more patients will receive enhanced access to care for neurological disorders with significantly reduced wait times.

As one of the largest pediatric neurology services in the nation, more than 30,000 patient visits occur each year in the 13 specialty clinics at Texas Children’s Neuroscience Center. Patients are treated for a number of conditions including epilepsy, cerebral palsy, Rett syndrome and movement disorders.

To ensure the full continuum of neurological care for these patients, Texas Children’s Chief of Neurology Dr. Gary Clark has always made it a priority to encourage and recruit more physicians into the field of neurology.

“As the medical community approaches retirement, we’re facing a local and national shortage of pediatric neurologists to fill this critical gap in patient care,” Clark said. “The average age of a child neurologist is 58.”

Using a portion of the $3.1 million received through a Medicaid waiver program from the state of Texas, Clark recruited 10 new neurologists, bringing the total of pediatric neurologists to 56. While many of the new recruits see patients at the Clinical Care Center on the Main Campus, Dr. Shannon DiCarlo is assigned to the Sugar Land location and Dr. Edward Espinelli sees patients in The Woodlands.

Besides expanding Texas Children’s neurology residency program, the additional state funding will be used to develop new programs for the hospital, including the nerve critical care service and a neonatal neurology service to diagnose and treat neonates with neurologic disease early to improve their long term developmental outcomes. Other priorities include expanding the neonatal follow-up program and developing the neurologic follow-up program.

“We are pleased to have these neurologists join our team so we can continue to better serve our patients and their families across the Greater Houston area,” Clark said.

New Neurologists

31115RohiniCoorg175Dr. Rohini Coorg:
Dr. Rohini Coorg is a neurologist within Texas Children’s Comprehensive Epilepsy Program and specializes in the diagnosis and treatment of children with seizures and epilepsy.
Coorg is board-certified in child neurology, clinical neurophysiology and epilepsy. She has a special clinical interest in genetic epilepsies, including Tuberous Sclerosis Complex, a rare genetic disease that causes children to develop benign tumors in their brain and other vital organs, increasing the risk of developing epilepsy and autism spectrum disorders.
Coorg obtained her undergraduate degree at Washington University in St. Louis and medical degree at the University of Texas Health Science Center at San Antonio. She completed a child neurology residency at University of California-Irvine and completed two fellowships in clinical neurophysiology and pediatric epilepsy at Washington University School of Medicine in St. Louis.
Coorg is an assistant professor of pediatrics and neurology at Baylor College of Medicine. She also is a member of the Child Neurology Society and American Epilepsy Society.

Dr. Gloria Diaz-Medina:
Dr. Gloria Diaz-Medina received her medical degree from the University of Puerto Rico School of Medicine and completed her pediatric residency at the University of Puerto Rico Pediatric Hospital. She completed a fellowship in pediatric neurology at Mayo Clinic College of Medicine in Rochester, Minnesota and a clinical neurophysiology fellowship at Baylor College of Medicine.
Diaz-Medina’s clinical and research interests include epilepsy and general pediatric neurology disorders.
Diaz-Medina is an assistant professor of pediatric neurology at Baylor. She is a member of the American Academy of Neurology, Child Neurology Society, Mayo Clinic Alumni Association and the American Epilepsy Society.

Dr. Shannon DiCarlo:
Dr. Shannon DiCarlo is a neurologist at Texas Children’s Combined Spasticity Management Clinic where she treats children with spasticity (muscle stiffness) associated with central nervous system disorders including cerebral palsy, traumatic brain injury, spinal cord injury and stroke. She also sees patients at Texas Children’s Sugar Land location.
DiCarlo obtained her undergraduate degree in psychology at the University of Texas in Austin and earned her medical degree from the University of Texas Houston Medical School. She completed residency training in pediatrics and child neurology at Baylor College of Medicine.
DiCarlo, an assistant professor of Pediatrics-Neurology at Baylor College of Medicine, is a member of the American Academy of Neurology and Child Neurology Society.

31115Emrick175Dr. Lisa Emrick:
Dr. Lisa Emrick received her medical degree from the University of Vermont College of Medicine. She completed her pediatric residency at Johns Hopkins Children’s Hospital in Baltimore and completed four years of training in neurodevelopmental disabilities (NDD) at Johns Hopkins and Kennedy Krieger Institute. Emrick moved to Houston to complete a two year genetics residency and a one year fellowship awarded by the United Mitochondrial Disease Foundation to focus on patients with mitochondrial disorders.
Emrick’s clinic and research interests include optimizing the care of children with neurogenetic disorders with an emphasis on mitochondrial disorders. Emrick collaborates with experts at Texas Children’s Fetal Center providing consults on fetuses with possible central nervous system malformations.
Emrick is a co-investigator on multiple clinical trials involving the management of children with neurogenetic disorders including Angelman syndrome and mitochondrial disorders. She also is a co-investigator for the National Institutes of Health’s Undiagnosed Diseases Network and has published research in multiple peer-reviewed journals.
Emrick is an assistant professor of child neurology at Baylor. She is a member of the American Academy of Neurology, Child Neurology Society, Kennedy Krieger Fellows Association, American Medical College of Genetics and Genomics, American Academy of Pediatrics and the Mitochondrial and Medicine Society.

31115EdwardEspinelli175Dr. Edward Espinelli:
Born and raised in North Houston, Dr. Edward Espinelli provides neurological care to patients at Texas Children’s The Woodlands Campus where he treats a broad range of neurological conditions including headaches, seizures, autism, developmental delay, cerebral palsy, dysautonomia and concussion.
Espinelli obtained his medical degree at the University of Texas Medical School at Houston, and while he was there, he completed his residency in pediatrics and a fellowship in pediatric neurology.
Espineli is board certified in Neurology with special qualifications in child neurology. His philosophy of care centers on caring for his patients as if they were his own family.
Espinelli is an assistant professor in the department of Neurology and Developmental Neuroscience at Baylor College of Medicine. He is a member of the Child Neurology Society, American Academy of Neurology, Texas Neurological Society, Texas Medical Association and the Harris County Medical Society.

Dr. Simon Kayyal:
Dr. Simon Kayyal, an assistant professor of pediatrics and neurology at Baylor College of Medicine, recently joined Texas Children’s neurology team where he will co-lead the development of a neonatal neurology service.
Kayyal received his medical degree from the University of Texas Medical School at Houston before completing his residency in pediatrics and child neurology at UT Southwestern Children’s Hospital of Dallas.
During his postdoctoral training, Kayyal observed many children and adolescent patients with irreversible brain injuries, which immediately sparked his interest in neonatal neurology. His philosophy of care centers on diagnosing neurologic conditions as early as possible when the brain is still developing to improve long-term outcomes. Kayyal is collaborating with neonatologists to develop Texas Children’s Neuro-NICU program and establish a protocol to determine where newborns will follow-up once they have been discharged from the Neuro-NICU.
In addition to this new role, Kayyal lectures medical students rotating through the neurology clerkship to help them prepare for the neurology shelf exams. He also provides specialized lectures to residents and fellows to prep them for the board exams and get better acquainted with the hospital and outpatient settings.

Dr. Meena Murti:
Dr. Meena Murti is a neurologist at Texas Children’s Sleep Center and Laboratory where she treats children with sleep disorders including hypersomnia, sleep apnea, insomnia, circadian rhythm disorders and restless leg syndrome.
Murti obtained her undergraduate degree in biochemistry and policy studies from Rice University and her medical degree from Baylor College of Medicine. She completed her pediatrics residency at Baylor and completed a fellowship in sleep medicine at the University of Michigan in Ann Arbor.
Murti is board certified in pediatrics and sleep medicine, and is a clinical assistant professor of sleep medicine at Baylor. She is also a member of the American Academy of Sleep Medicine and a fellow of the American Academy of Pediatrics.

Dr. Anuranjita Nayak:
Dr. Anuranjita Nayak received her medical degree from V.S.S. Medical College in Odisha, India. She completed her pediatric residency in Monmouth Medical Center in Long Branch, New Jersey and completed her child neurology residency at Saint Louis University School of Medicine in St. Louis, MO. She also obtained a fellowship in clinical neurophysiology from the University of Florida in Gainesville.
Nayak’s clinical and research interests include epilepsy, epilepsy surgery, neurocutaneous syndromes and pediatric strokes.
Nayak is an assistant professor of neurology and neurodevelopmental disabilities at Baylor College of Medicine. She is a member of the American Academy of Neurology, American Academy of Pediatrics and American Epilepsy Society.

Dr. Mered Parnes:
Dr. Mered Parnes is an attending neurologist at Texas Children’s Pediatric Movement Disorders Clinic where he treats patients with impairments of body movement and control.
Parnes earned his medical degree at Drexel University College of Medicine (formerly Medical College of Pennsylvania-Hahnemann School of Medicine) in Philadelphia. He completed his general pediatric residency at SUNY Downstate Hospital in Brooklyn before moving to Houston where he entered the Neurodevelopmental Disabilities Residency Program. Parnes became drawn to the field of movement disorders, and was invited to enter the Baylor Movement Disroders Fellowship Training Program. He is currently completing his fellowship while seeing patients in the Pediatric Movement Disorders Clinic.
Parnes is board certified in neurology with a special qualification in child neurology. His clinical and research interests include pediatric movement disorders such as Tourette syndrome and neurodevelopmental disabilities.
Parnes sits on the Tourette Syndrome Association of Texas Medical Advisory Board, and is a member of the American Academy of Neurology, the Child Neurology Society and the Movement Disorder Society.

Dr. Monika Ummat:
Dr. Monika Ummat is assistant professor of pediatrics at Baylor College of Medicine and serves as faculty in the Neurophysiology Department and Epilepsy Monitoring Unit at Texas Children’s.
She specializes in treating children with seizures, epilepsy and other neurological disorders.
Ummat obtained her medical degree from Bharati Vidyapeeth Medical College in Pune, India. She completed residencies in pediatrics and child neurology at Baylor before completing a child neurophysiology fellowship at Duke University Medical Center in Durham, North Carolina.
Ummat is a member of American Academy of Neurology, Child Neurology Society, American Epilepsy Society and Clinical Neurophysiology Society.

December 9, 2014

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Dr. Simon Kayyal, an assistant professor of Pediatrics and Neurology at Baylor College of Medicine, recently joined Texas Children’s neurology team. He will develop and co-lead the Neuro-Neonatal Intensive Care Unit (Neuro-NICU) with Texas Children’s Neonatologist Dr. Jeffrey Kaiser, a professor of pediatrics, obstetrics and gynecology at Baylor College of Medicine.

Kayyal received his medical degree from the University of Texas Medical School at Houston before completing his residency in pediatrics and child neurology at UT Southwestern Children’s Hospital of Dallas.

During his postdoctoral training, Kayyal observed many children and adolescent patients with irreversible brain injuries, which immediately sparked his interest in neonatal neurology. Kayyal thought, “The earlier we diagnose and treat neurologic disease, the better chance we have for improving the developmental and overall outcome of our premature and critically ill infants.”

This common goal fueled Kayyal’s passion to collaborate with neonatologists to develop Texas Children’s Neuro-NICU program. “Our goal is to help babies born with severe neurologic issues be able to enjoy life without impairments,” said Kayyal, who will also create a protocol to determine where newborns will follow-up once they have been discharged from the Neuro-NICU.

Just like a cardiovascular NICU houses newborns with heart disease, infants with neurologic disease would be treated in the Neuro-NICU where they would receive multidisciplinary care from specialists in neonatology, neurology, neurosurgery, developmental medicine and neuroradiology. The plan is to also include an MRI machine in the Neuro-NICU that would eliminate the need to transport unstable infants to other parts of the hospital.

“We want to minimize families’ anxieties during this critical time,” said Kayyal. “When they see neurologists, neonatologists, and neurosurgeons working in unison to determine the best treatment plan for their child, they know their infant is receiving the best care possible to improve their outcomes.”

The Neuro-NICU service will eventually include Texas Children’s other neurology services, like the hypothermia program led by Dr. Kaiser. The hypothermia program provides whole body cooling treatment for newborns who are oxygen deprived at birth, reducing their potential risk for severe neurologic damage.

“Dr. Kayyal is bringing an exciting vision to the neurology team with plans to better serve our patients and their families,” said Dr. Gary Clark, chief of Neurology and Developmental Neuroscience at Texas Children’s. “We are pleased to have him join our team to bring more capabilities and expertise to our division.”

In addition to this new role, Kayyal lectures medical students rotating through the neurology clerkship to help them prepare for the neurology shelf exams. He also provides specialized lectures to residents and fellows to prep them for the board exams and get better acquainted with the hospital and outpatient settings.

“I am excited to pursue my passion at Texas Children’s and work alongside some of the best physicians in our specialty,” said Kayyal. “Returning home to Houston is an added plus.”