Regem Biyo shares how grateful she is to begin her nursing career at Texas Children’s Pavilion for Women and how the organization is helping her grow in her new role. Read more
Dozens of families recently attended the first ever HEAR Houston Resource Fair, presented by Texas Children’s Audiology Program.
HEAR (Hearing Education, Awareness and Resources) Houston – held in collaboration with the Division of Otolaryngology and the Speech, Language and Learning Clinic – was designed to bring families of children living with hearing loss together, and to educate them about some of the numerous resources, programs and services available in the greater Houston area.
“Sometime such tremendous focus is placed on providing the right diagnosis and identifying the right treatment path for a child that is deaf or hard of hearing that care givers might discount the fact that the parents need help too,” said Dr. Wendy Steuerwald, director of Audiology at Texas Children’s. “We wanted to comprehensively highlight resources that both our patients and parents have benefited from, bring them here to Texas Children’s, and give people an opportunity to connect with one another and get the information they need.”
HEAR Houston featured more than a dozen vendors and exhibitors, selected with input from Texas Children’s audiologists and patient families. These vendors offered expertise and guidance on a broad spectrum of interrelated services and resources, including:
- The latest in hearing aids, cochlear implants and caption telephones
- Community outreach programs
- Parent support groups
- Educational audiology and services in schools
- Speech-Language therapy
- Deaf education
- The transition from pediatric to adult audiology
The event also featured programs at Texas Children’s, including upWORDS – designed to help parents learn how to improve their child’s early language – and the Speech, Language and Learning Clinic, which provides evaluation, management and consultation for infants, children, adolescents and adults who have problems with communication, learning, feeding and swallowing.
The offering of resources was so comprehensive, even the vendors were impressed.
“Texas Children’s staff and physicians provided a wonderful venue for learning what resources are available for children who are deaf or hard of hearing,” said Sara Smith from Guide By Your Side™ – a family support program offered by Texas Hands & Voices™ that pairs families with children who are deaf or hard of hearing with trained parent guides who have walked in their shoes and can share their experiences, as well as direct families to information and resources. “It was truly wonderful to see ‘the village’ coming together – with so many support agencies, technology companies and educational programs present – to ensure each unique child has the opportunity to reach their potential.”
The response has been extremely positive. Plans are already being made to make HEAR Houston an annual event. But one of the most exciting developments is a plan to create a parent support group.
“To feel successful raising a child who is deaf or hard of hearing, parents seek the advice of other parents in similar situations – they want to interact with and learn from them,” Steuerwald said. “Our goal with this event was really to build a community. A support group will allow parents to socialize their children with other children with similar conditions, and it will continue to foster parent-to-parent education and discussion.”
Ella Grace Hurlbut, who was born prematurely at 27 weeks and who passed away at just 50 days old, has been the catalyst for bringing joy out of sorrow – most recently at Texas Children’s Hospital The Woodlands. Little Ella was the first neonatal intensive care unit baby that nurse Christina Snell cared for who passed away.
“I had a really hard time with it, and I didn’t know what to do with the pain that was having,” Snell said. “So, I decided I would do something good with it.”
That “something good” has culminated in the opening of a bereavement room called the Garden Room at The Woodland’s NICU. Designed by Snell and funded by her parents, Steve and Tammy Barr, the room is a non-sterile, peaceful environment where families have the chance to spend extra time saying goodbye to their child. The room also can be used by families who are getting used to caring for their MICU baby’s needs before going home.
Similar to the Butterfly Room at Main Campus’s NICU, the Garden Room features a crib, couch, two gliders, a chest full of clothes to dress their little ones in and a Caring Cradle. Donated by the Hurlbut family, the cradle cools a baby’s body after passing, therefore prolonging the amount of time a family can spend with their baby.
“Christina helped us make molds of Ella’s hands and feet, and to this day, those are my most treasured possessions,” Katie Hurlbut said. “I knew it wasn’t a coincidence when we found out she was the one leading the development of the bereavement room in The Woodlands.”
In addition to the Caring Cradle, the Hurlbut family also donated stuffed bears, clothes and linens to the Garden Room. Two artists, Alicia Kowalki “Los Queridos” and Genie Mack, provided beautiful pieces for the room’s walls.
“We are extremely thankful for the time and effort of those who contributed to this special space,” said Susan Romero, assistant clinical director of the NICU in The Woodlands. “It will give many families a great sense of peace.”
Following Washington State Senator Maureen Walsh’s “card-playing” comment undermining the role of nursing, Amanda Wenger shares why every nurse at Texas Children’s should be proud of the work they do for our patients. Read more
Texas Children’s launched online scheduling in English and Spanish to allow current, new, and referred patients to schedule appointments via DocASAP, our online scheduling partner.
After clicking the online scheduling button on Texas Children’s homepage, patients are directed to the new texaschildrens.org/appointment page where they can view all scheduling options available. Patients also can access online scheduling directly from provider profiles and department pages.
Since implementing this feature, over 1,400 appointments have been scheduled online. This online scheduling service is available at Texas Children’s three campuses – Medical Center Campus, West Campus, and The Woodlands Campus – and our specialty care locations in Houston and Austin.
Texas Children’s is the only pediatric hospital of the top five on the U.S. News & World Report Honor Roll to offer this easy and convenient online scheduling tool for patients and their families.
Click here to watch a video tutorial on how to schedule appointments online at Texas Children’s.
About Texas Children’s Patient Access Initiative
Launched in August 2017, Texas Children’s Patient Access Initiative is an on-going, collaborative effort to improve patient access across the organization. Since then, Texas Children’s has made significant progress to ensure patients easily and conveniently get in the door so we can provide the care they need, when they need it.
Click here for a list of other tools and features we’ve implemented across the system to improve access, care coordination and patient experience at Texas Children’s.
This week is Patient Experience Week at Texas Children’s, a time that we highlight and celebrate the compassion that we provide to patients daily.
The Purple Songs Can Fly documentary, “Journey to Hope,” was recognized with the Platinum Remi Award at the 2019 WorldFest-Houston.
“My father must have orchestrated this from heaven along with all the other angels watching over Mia, Layla, Dominic, Emily, Stephen and Christian,” said Anita Kruse, founder and executive director of Purple Songs Can Fly. “Thank you. Your love is eternal and shows us that hope is always here. This one’s for you.”
Purple Songs Can Fly, the first recording studio created on a pediatric cancer floor, was founded in 2006 at Texas Children’s Hospital. Thirteen years and thousands of songs later, six childhood cancer patients, Mia, Layla, Dominic, Emily, Stephen and Christian, come together as survivors to share “Journey to Hope,” an original musical featuring their own songs. Written and recorded in the Purple Songs Can Fly studio during their individual cancer journeys, these songs were created as a way to express the myriad of emotions and feelings a pediatric cancer diagnosis may bring.
“We were thrilled to be included in this year’s line up at WorldFest-Houston, alongside many other wonderful, independent films,” Kruse said. “It was a great stage for our story to be told, truly shining a light on pediatric cancer.”
Now in its 52nd year, WorldFest, the Houston International Film Festival, showcased more than 60 new independent feature films and more than 100 award-winning shorts from around the globe. The WorldFest mission is to recognize and honor outstanding creative achievement in film and video, while educating and introducing excellence in cinematic arts for the promotion of cultural tourism in Houston. Founded in 1961 as an international film society, it evolved into a competitive international film festival in 1968, and became the third such festival in North America, following San Francisco and New York.
“We’re so proud of Anita and the incredible patients who created such a beautiful film,” said Carol Herron, coordinator of the Periwinkle Arts In Medicine Program at Texas Children’s Cancer and Hematology Centers. “Purple Songs Can Fly has provided hundreds of patients and siblings the gift of sharing their journey through song, and we are so grateful for the opportunity to share this special piece with our community.”
To view the trailer, visit “Journey to Hope.” For more information about Purple Songs Can Fly, visit www.purplesongcanfly.org and for more information about 2019 WorldFest-Houston, visit www.worldfest.org.