September 10, 2019

Texas Children’s recently hosted the Patient Access Collaborative’s Pediatric Patient Access Symposium held on September 5 and 6. This two-day conference provides a forum for the nation’s largest and most prestigious health systems to discuss, collaborate and advance initiatives that can vastly improve patient access to ambulatory care.

Each year, industry leaders from across the country come together to share ideas on solving some of the most challenging aspects of patient access. Approximately 50 attendees representing 20 of the largest pediatric hospitals in the country convened at Texas Children’s Pavilion for Women to attend this annual conference. “The Patient Access Collaborative offers us a forum – year round – to collaborate with our peers and move towards the shared goal of advancing access to care for children across the country,” shared Grace Karon, Assistant Director of Business Operations and Strategic Planning.

Highlights from the first day of the symposium included opening remarks from Texas Children’s Surgeon-in-Chief Dr. Larry Hollier, who shared this video of our hospital’s patient access journey, and the incredible strides our organization has made in the last year to improve access for our patients and their families system wide. Guests also had the opportunity to tour our state-of-the-art Lester and Sue Smith Legacy Tower and Mission Control.

The Patient Access Symposium also included several insightful workshops and presentations on patient access-related topics including scheduling optimization, national benchmarks, and referral management, to name a few.

Discussion groups run by Texas Children’s leaders offered attendees the opportunity to transparently share barriers and lessons learned from their own access journeys.

  • Challenges of Governance, Sustainability, Leadership and Change Management in Access Journey

Trent Johnson, Assistant Vice President

Ramzey Ibrahim, Manager – Business Process Transformation

  • Patient Access Technology Opportunity: Reducing No Shows, Call Center Optimization, Patient Portals

Julie McGuire, Director – Enterprise Systems

Colleen Julien, Manager – Enterprise Systems

Martin Wortley, Assistant Director – Customer Care Contact Center

Dr. David Bank, Vice Chair for Clinical Affairs – Ambulatory Services and Network Development at Texas Children’s Hospital and Baylor College of Medicine, delivered the welcome address for day two of the annual symposium. “As a result of the efforts of everyone involved in the Access initiative, Texas Children’s national reputation will become even stronger as we emerge as “THE” leader in the national effort to improve access to care for children and their families.” Dr. Bank is the founder of the Pediatric Access Collaborative and also serves on the Board of Advisors for the Patient Access Collaborative.

Day two of the symposium highlighted some of the recent milestones of two major Access initiative ventures that leveraged technology solutions to solve complex operational problems:

  • Texas Children’s Space Utilization Program

Sara Montenegro, Assistant Vice President – Texas Children’s Pediatrics

Taylor Pierce, Business Process Engineer

  • Texas Children’s Move to Online Scheduling

Diesa Samp, Director of Transplant and Ambulatory Nursing

Martin Wortley, Assistant Director – Customer Care Contact Center

Elisa Lange, Lead – Marketing Special Projects

“We are so honored to have this opportunity to host this year’s symposium at Texas Children’s Hospital,” said Texas Children’s Assistant Vice President Carrie Rys. “It was a tremendous opportunity to share our access improvement journey as well as gain valuable insight on improvement ideas from our peer network.”

Aaron Mansfield shares how a mobile end-of-treatment bell that he designed and built is helping our cancer patients and their families celebrate this memorable milestone in their cancer journey. Read more

Your name, title and department. How long have you worked here?
Donna Jackson, Senior Administrative Assistant, Texas Children’s Health Plan. I have worked at the Health Plan for two years and previous to that at Facilities Planning and Development at the Medical Center Campus for four years.

Tell us how you found out you won a super star award.
Sara Gonzalez-Quezada asked me for help with the AV equipment in the conference room. When I walked in everybody from the Executive 14th floor was there, including Mark Mullarkey and all my leaders. They yelled surprise and that’s when I found out I won a Super Star award. I was in disbelief and speechless.

What does it mean to be recognized for the hard work you do? How has the organization helped you achieve your personal and professional goals?
I was very shocked as I have been at the Health Plan for a fairly short time, compared to others who work so tirelessly every day. I am accepting this award for the entire Administration team as there are many people here at the Health Plan who deserve this award as well. My leaders have continuously shown me appreciation, flexibility and support. In turn my goal is to make their jobs easier, within my possibilities. At The Health Plan I get to work with an amazing group of people and the view from the 14th floor is the envy of many. In addition to this, the location makes for a shorter commute to work, which allows me to spend more quality time with my family.

What do you think makes someone at Texas Children’s a super star?
A super star creates opportunities to go above and beyond and provide a service reflective of the mission. At the Health Plan, we have so many super stars who work tirelessly for our Health Plan members.

What is your motivation for going above and beyond every day at work?
As an Admin everything we do is to make Leaderships’ job easier in some way. They are always very busy and work long hours, so anything that I can do to minimize their workload, by taking the initiative, being a problem solver and always having a positive attitude helps. They always let me know that I am appreciated which is nice.

What is the best thing about working at Texas Children’s?
Working at the Main Campus was my first experience in health care, so knowing that you are working for children and their families is really special. There is always something interesting going on. At the Health Plan we are all working toward the same goal for our Health Plan members. Everyone here is so dedicated to making the members’ satisfaction a success.

What does it mean to you that everyone at Texas Children’s is considered a leader? What is your leadership definition?
“We are all leaders” is something that is stressed at the Health Plan. For me personally, it enables me to be very proactive in my work and allows me to take the initiative on many projects. Because of this I am always learning new ideas and making contacts, which in turn makes me better at what I do.

The Woodlands Rewards and Retention Committee is honored to present this quarter’s Woodlands Shining Star winners. Physical and occupational therapy (PT/OT) technician Robert Cole, and Infectious Disease provider Dr. Ankhi Dutta, were honored for their hard work and dedication.

Cole was nominated by many of his co-workers and peers for embodying all of the values of Texas Children’s. He constantly makes himself available when needed, even if this means coming in early or working through lunch.

“There was a patient that had to be rescheduled multiple times and due to no other opening, the patient had to be scheduled during lunch time one week and early morning before regular appointment times the following week,” Physical Therapist Kendall Peterson, shared. “Robert offered, without hesitation, to come in to assist the therapist put a cast on the patient both weeks. He gave up his lunch and he came in early before his shift started in order to help the therapist and the family.”

Another example of Cole living the core values is his undeniable willingness to help. One day when he was headed to lunch, he noticed a family from the therapy department in the parking garage having car trouble. He spent his lunch time helping the family get their car started, and making sure their needs were met.

Cole’s helpful spirit is also spread to other employees during times when they may need to step away from the stress of work. He is the organizer and motivator for the Woodlands Therapy Department kickball team and constantly encourages new therapists to participate.

Dutta was nominated for living the values of embracing freedom, leading tirelessly, living compassionately, and amplifying unity. She is very well respected and known for going above and beyond for her patients and families.

“Dr. Dutta is the rare specialist who knows and cares for the whole patient,” Dr. Stephen Edwards said. “As a tireless leader, no matter where the patient is inpatient, outpatient, PICU, NICU, even College Station, she is readily available to offer guidance and is a light when doubts in patient care case darkness.”

She has been instrumental with helping the care team diagnose and care for patients even after they are transferred to the Medical Center Campus PICU. This is just one of the many ways that she constantly goes the extra miles for our patients and their families.

Congratulations to each of you and a huge thank you for being the shining stars that you are and going above and beyond for our patients, families, and co-workers!

Hyundai Hope On Wheels (HHOW) dedicated half a million dollars in Hyundai Young Investigator and Scholar Hope awards last week to Texas Children’s Cancer and Hematology Centers to help Texas Children’s continue its long-standing fight against pediatric cancer.

HHOW, a non-profit organization supported by Hyundai and its U.S. dealers, has committed $13.2 million to support 52 physician-researchers across the nation in their research for better treatment options and to improve care for children diagnosed with pediatric cancer.

The Hyundai Young Investigator and Scholar Hope Grants dedicated to Texas Children’s were presented on September 6 to Dr. Susan Blaney, director of Texas Children’s Cancer and Hematology Centers, during a Handprint Ceremony.

The awards will support the research of Drs. Sarah Injac and Alison Bertuch. Bertuch, director of the Cancer Center’s Bone Marrow Failure Program, is studying the role of DNA repair defects in leukemia predisposition in the Ribosomopathy Shwachman-Diamond Syndrome. Injac, a Cancer Center physician-scientist, is conducting research on medulloblastoma, the most common malignant brain tumor in children. To read more about their work, click here.

“Research is vital to our continued fight against cancer,” Blaney said. “We appreciate the continuous support provided by Hyundai Hope On Wheels gives, which allows us to continue our efforts, without interruption, to find a cure for all pediatric cancers.”

During the ceremony, children who are battling cancer at Texas Children’s dipped their hands in paint and placed their handprints on a white 2019 Hyundai Santa Fe. Their colorful handprints on the official Hope Vehicle represent their individual and collective journeys, hopes and dreams.

“For 21 years, Hyundai and its dealers have partnered with physician scientist research teams from the top hospitals and institutions around the country in a quest to finally beat this disease,” says Scott Fink, Board Chair and Hyundai dealer owner, Hyundai of New Port Richey. “Hyundai’s contributions have helped to significantly improve childhood cancer cure rates to more than 80 percent. This is why every minute is precious and every second matters in the fight against pediatric cancer.”

HHOW remains one of the largest foundations in the nation to support medical institutions and efforts to support cutting edge pediatric cancer research. This year will reach $160 million in total lifetime funding since 1998 towards finding a cure. With this latest award, Texas Children’s has received $3.3M since 2008 from HHOW.

For more information about Hyundai Hope On Wheels and to view a list of our 2019 Hope On Wheels grant winners, please visit www.hyundaihopeonwheels.org/research.

The Meyer Center for Developmental Pediatrics at Texas Children’s Hospital, Baylor College of Medicine and the Spina Bifida Association recently hosted the Houston Spina Bifida Education Day for patients, families and caregivers. Held at Houston Methodist Hospital, the event showcased newly established, evidence-based national guidelines for the care of individuals living with spina bifida. This is the first time the guidelines, written in part by Texas Children’s and Baylor clinicians and researchers, were shared with such a broad audience.

More than 100 people from across Texas and other states as far as Florida and Indiana attended the event. In addition to unveiling the new guidelines, experts from Texas Children’s presented talks covering a range of health issues faced by individuals living with spina bifida from infancy to adulthood. There also were presentations on related topics such as care coordination, emotional wellness, skin, and bowel-management tips specifically geared toward this group of families.

“Usually, clinical care guidelines are widely shared and disseminated among medical practitioners, not so much the lay public, so this conference not only provided professional guidance, but also much needed peer-to-peer advice,” said Dr. Ellen Fremion, a physician in the Spina Bifida Program at Texas Children’s and one of the organizers of the event. “Moreover, the heartfelt appreciation and deep emotional reactions from the families who attended this conference exemplifies how crucial it is to empower patients, families and caregivers with this kind of information, so they are better equipped to care for themselves and their family members.”

Spina bifida (meaning “split bone”) is the most common permanently disabling birth defect seen among newborns in the United States. It is a type of neural tube defect that occurs when a baby’s neural tube fails to develop or close properly. The symptoms of this condition range from mild to severe, depending on where the spinal cord is affected. Myelomeningocele is the most severe form of spina bifida in which parts of the spinal cord and nerves come through the open part of the spine. This leads to several related problems such as loss of feeling in areas below the opening, weakness or paralysis of the feet or legs, problems with bladder and bowel control. Some affected individuals have additional neurological complications, including a buildup of excess fluid around the brain (hydrocephalus) and diverse cognitive challenges. Multiple environmental (such as folic acid deficiency) and genetic factors are thought to cause this complex condition, although the exact causes are still unclear.

The Meyer Center’s Spina Bifida Program at Texas Children’s is a multidisciplinary program that includes several specialty services: neurosurgery, developmental pediatrics, urology, orthopedics, and physical medicine and rehabilitation. Experts from these specialties offer prenatal evaluations and follow patients from in utero to adulthood.

In 2011, Texas Children’s was among the first centers to perform open fetal surgery to treat spina bifida. Using this procedure, the defect in the fetal spine is accessed and repaired through an incision across the mother’s uterus (womb), and has since been the standard of care for spina bifida. In 2014, Texas Children’s Fetal Center pioneered a novel minimally-invasive fetoscopic procedure, in which the spinal defect is repaired through tiny incisions in the uterus using a small camera. This offers the same improved outcomes as the open fetal surgery but comes with additional benefits and reduced health risks.

“Despite recent advances of in utero repair procedures, surgery is not suitable for all patients and cannot be considered a cure,” said Dr. Jonathan Castillo, clinical director of the Spina Bifida Program at Texas Children’s. “Additionally, these surgeries may not reverse all the function or correct all related impairments. Also, these procedures are specific to myelomeningocele and may not help patients with other forms of spina bifida. Therefore, a deeper understanding of the etiology and biology of this condition is crucial to develop better treatment approaches in spina bifida care.”

In addition to providing cutting-edge clinical services, physicians and researchers at Texas Children’s Spina Bifida Program also are engaged in comprehensive, multidisciplinary research initiatives to find newer and safer medical and surgical interventions that can improve the quality of life for these individuals.

In 2014, a multidisciplinary team of experts at Texas Children’s Spina Bifida Program led by Drs. Heidi Castillo, Jonathan Castillo and Duong Tu, received a federal grant from the U.S. Centers for Disease Control and Prevention (CDC) to develop national standards in spina bifida care at the population level. Texas Children’s was the only funded hospital in Texas to be included in this effort, and, along with Baylor, was among the first institutions in the state to participate in the CDC’s National Spina Bifida Registry that collects medical data from this population to improve outcomes.

“Receiving that grant from the CDC and joining the registry gave us an amazing opportunity to participate in a nation-wide effort to develop better outcomes, interventions and standards of care for individuals with spina bifida,” Castillo said. “Since we are one of the major referral sites for spina bifida in the state of Texas, our team provides the entire spectrum of care to pediatric patients – from prenatal diagnosis, surgical interventions and postnatal care until adulthood – for myriad health issues related to spina bifida. This gives our team access to a wide demographic of participants and allows us to conduct unique in-depth studies and comparisons of the outcome measures of current interventions.”

“These studies have led to important findings that are reflected in the recent clinical care guidelines, and have revealed consistent disparities in the outcomes based on patient’s socioeconomic conditions and ethnicity, a novel observation that is currently under further investigation,” Castillo said. “Our team is excited that recently the CDC granted an extension of this grant for five more years, so we can continue to be at the forefront of comprehensive clinical care and research initiatives that will improve the lives of individuals living with spina bifida.”

September 4, 2019

Two years after Hurricane Harvey, Texas Children’s employee Alex Sardual is still dealing with the effects of the historic disaster. Last year we reported that he had not even scratched the surface of fully renovating his home that was destroyed in 2017. Today, Sardual is excited to say that the process is almost completed and his family can move in soon.