November 14, 2017

On November 4, Texas Children’s Fetal Center held another successful reunion event at Texas Children’s Pavilion for Women. Families from around the country and internationally traveled to Houston to reconnect with Fetal Center physicians, nurse coordinators and staff.

Since the first event in 2007, the reunion has brought together patients and their families who received life-saving fetal interventions and fetal surgeries and has become a cherished experience for families and staff alike.

“Many of these families spend extended periods of time with the Texas Children’s Fetal Center staff and in our neonatal intensive care unit,” said Dr. Oluyinka Olutoye, co-director of Texas Children’s Fetal Center. “A bond is formed among our patient families and the team members that treat their children. These families trust us with the wellbeing of the most precious parts of their lives – their children. We don’t take the responsibility lightly, and we cherish the opportunity to see these children grow.”

Jeff and Margaret Boemer reunited with other patient families to celebrate the lives of these precious miracle babies that were cared for at Texas Children’s by our maternal fetal medicine and NICU staff.

“We are grateful to Texas Children’s and all of the doctors who gave us hope and didn’t let us give up on our baby,” said Boemer, whose daughter Lynlee underwent fetal surgery at Texas Children’s to remove a large tumor (sacrococcygeal teratoma) growing from her spine. “It is a joy to have our daughter with us every day and an honor to share Lynlee’s story with other moms going through similar circumstances.”

After recently celebrating their daughter’s one year birthday in June, Lynlee is doing remarkably well and continues to inspire and impress her parents and doctors. In fact, she reached a huge milestone – she started walking and loves to play games with her older siblings.

John and Elysse Mata also attended the fetal reunion celebration with their 3-year-old twin daughters Knatalye and Adeline, who spent 10 months being cared for in our neonatal intensive care unit before being successfully separated in a 24-hour operation on February 17, 2015, at Texas Children’s Hospital.

Stay tuned to Connect for an upcoming article on the Mata twins’ remarkable progress since their historic separation surgery nearly three years ago.

October 10, 2017

Texas Children’s collaborative work to develop a novel device to anchor the chorio-amniotic membranes during fetal surgery was recently funded by the Eunice Kennedy Shriver National Institute Of Child Health & Human Development (NICHD) of the National Institutes of Health (NIH).

Partnering with Baylor College of Medicine, the Department of Bioengineering at Texas A&M University, and local life sciences commercialization firm Fannin Innovation Studio, the $225,000 Small Business Innovation Research (SBIR) grant will be used to advance the development of a device that can be introduced into the uterine cavity under ultrasound guidance to anchor the chorio-amniotic membranes, thereby reducing the risk for premature rupture of membranes (PROM) during fetal surgery.

Preterm PROM is the most frequent complication associated with fetal surgery and can increase the risk of premature delivery that could potentially add the insult or prematurity to the fetal anomaly that leads to the need for fetal surgery.

Through the Texas A&M undergraduate and graduate design program, a group of Texas A&M engineering students collaborated with Dr. Jimmy Espinoza and OB/Gyn-in-Chief Dr. Michael A. Belfort, obstetricians and gynecologists, and fetal surgeons at Texas Children’s and Baylor, to create the device in 2016. Espinoza and Belfort challenged the students to develop innovative tools that could be percutaneously introduced into the uterus during fetal surgery to anchor the chorio-amniotic membranes in order to reduce the risk of preterm PROM.

Fetal surgery is a relatively new discipline that aims to reduce the risk for fetal death in conditions such as twin-to-twin transfusion syndrome, severe fetal anemia, congenital diaphragmatic hernia or fetal hydrops, or reduce the long term complications and improve the quality of life in conditions such as spina bifida. Texas Children’s and Baylor are at the forefront on fetal surgery in the U.S. and have innovated techniques to make fetal surgery safer for the mothers and their unborn children.

After extensively collaborating with Texas Children’s surgeons to understand the challenges of anchoring the chorio-amniotic membranes during fetal surgery and the need for refinement, the collaborative team developed a device that can be percutaneously introduced into the uterine cavity under ultrasound guidance in order to anchor the chorio-amniotic membranes to reduce the risk for preterm PROM. This new innovation in fetal surgery could potentially be used in all fetal surgeries because of its percutaneous approach and should reduce the risk for the most common complication associated with fetal surgery, namely pre-term PROM.

“The development of new devices and new approaches in fetal surgery is very important to make fetal interventions safer not only for the fetus but also for the mother,” said Espinoza, co-director of the Fetal Center at Texas Children’s. “The decision to proceed to fetal surgery is very altruistic for the mothers because they will be exposed to risks associated with surgery for the benefit of their unborn child. Thus, we have the obligation to minimize those risks. This award recognizes the academic partnerships that are necessary to advance the frontiers of fetal surgery.”

The team’s invention has won the top prize at Texas A&M University’s 2016 annual Engineering Design Showcase. The project was judged against over 700 students on more than 150 other projects.

June 13, 2017

Lynlee Boemer, a miracle baby who underwent fetal surgery performed at Texas Children’s Fetal Center to remove a large tumor (Sacrococcygeal Teratoma) growing from her spine, celebrated her first birthday on June 6.

Last week, Jeff and Margaret Boemer were at Texas Children’s for their daughter’s follow-up clinic appointment with Dr. Oluyinka Olutoye, co-director of the Fetal Center. Since their daughter’s surgery, Lynlee is meeting all of her milestones and is very active. She loves to crawl, pull up to stand and has several favorite words she likes to say like, “hi, bye-bye and Mama and Da-Da.”

“She has been in physical therapy, and thankfully, we have been able to take a break from that since she is doing so well,” said Lynlee’s mom Margaret Boemer. “She’s pulling up and almost walking. But we’re also seeing other doctors to check for GI and urology type issues. But other than that, she is doing really, really well.”

Boemer says one of the biggest blessings of sharing Lynlee’s story has been that other women pregnant with babies who have the same diagnosis as Lynlee are reaching out to her via social media, and she is able to give them hope and often refers them to Texas Children’s Fetal Center.

Boemer was 23 weeks and 5 days pregnant with her daughter Lynlee when she underwent emergency fetal surgery to remove the baby’s Sacrococcygeal Teratoma (SCT), a large vascular mass. Occurring in only 1 in 40,000 pregnancies, Lynlee’s SCT was robbing her blood supply and would eventually cause heart failure.

Lynlee had a 50/50 chance of survival. Olutoye and a surgical team worked for approximately five hours to remove the tumor growing from the baby’s tailbone, which was almost larger than the baby herself.

During the surgery, Lynlee’s heart stopped and had to be re-started and she was also given a blood transfusion. Surgeons made an incision in Margaret’s uterus and pulled out the baby from her legs to her torso so they could remove the tumor. Once the incision was closed, Lynlee was placed back inside of her mother and Margaret’s uterus was sewn shut and she was on bed rest for the remainder of her pregnancy. Surgeons were able to remove about 90 percent of the tumor, but as the pregnancy progressed, the tumor began to grow again.

Margaret was 36 weeks pregnant when Lynlee Hope was born for the second time via C-section on June 6, 2016 weighing 5 lbs., 5 oz. Lynlee was taken to the level 3 NICU for an evaluation, but was doing so well she was transferred to the level 2 nursery. At 8 days old, Lynlee underwent a second surgery to remove the rest of the tumor from her tailbone including some that had grown inside of her body.

Olutoye removed the remaining SCT tissue and Lynlee recovered wonderfully in the NICU and was able to go home just weeks after her surgery.

The family, from Lewisville, Texas, is now enjoying life at home as a family of five and they come to Texas Children’s for check-ups as Lynlee grows.

“We’re thankful that we gave her a chance at life,” Boemer said. “And we’re very grateful for all that the doctors at Texas Children’s have done to give her that life and all the wonderful care that they gave me and Lynlee while we were here.”

April 12, 2017

Dr. Wesley Lee, co-director of Texas Children’s Fetal Center and section chief for women’s and fetal imaging at Baylor College of Medicine, recently received the Presidential Recognition Award from the American Institute of Ultrasound in Medicine (AIUM) during its annual meeting last month.

Each year, AIUM President Dr. Beryl Benacerraf extends special recognition to individuals for outstanding contributions and service to the future of ultrasound in medicine. Lee was honored for his critical role in developing a national curriculum for OBGYN ultrasound training based on the participation of several professional societies including the American Congress of Obstetricians and Gynecologists, Society for Maternal-Fetal Medicine and the Council on Resident Education in Obstetrics and Gynecology.

Among his many accomplishments, Lee has authored 148 peer-reviewed articles and 20 book chapters pertaining to maternal-fetal medicine, prenatal detection of congenital anomalies, 3-/4-dimensional fetal sonography and fetal magnetic resonance imaging.

September 20, 2016

It’s been more than a year and a half since a team of Texas Children’s surgeons and medical staff separated conjoined twins Knatalye Hope and Adeline Faith Mata in an historic, more than 24-hour-long procedure. Since then, the girls – now 2 years old and living at home near Lubbock – have worked hard with various types of therapists, medical experts and on their own to recover from the monumental surgery.

During a recent visit to Texas Children’s Hospital, physicians and medical personnel got an up-close look at just how far the girls have come. When a nurse in pulmonologist Dr. Fadel Ruiz’s office weighed the girls, they walked up to the scale and hopped on. When the nurse bent over to take their blood pressure, they sat on the exam table and reached for her stethoscope like it was a toy. And, while the girls were waiting for Dr. Ruiz to enter the room, they, like most toddlers, ran around, chattered and begged for snacks.

“They are growing and reaching milestones every day,” the twins’ mother Elysse Mata said. “It’s non-stop around our house. We aren’t getting much sleep but that’s OK.”

The girls’ father, Eric Mata, said watching his girls grow and get stronger every day feels good and that he sometimes has to stop and think just how far they have come. “It’s amazing really,” he said. “I never imagined our lives would be like they are today.”

Dr. Darrell Cass, one of the lead surgeons in the separation case and co-director of Texas Children’s Fetal Center, said Knatalye and Adeline are doing “awesome!” He said Adeline is slowly being weaned off of her ventilator and G-tube, devices she only uses occasionally versus all the time after the separation. The toddler’s pelvis is healing well and her lungs are continuing to grow and become stronger, progress Cass said will help her walk, talk and eat even better than she is now.

Knatalye’s breathing is so good Cass said cardiovascular surgeon Dr. Dean McKenzie recently removed a metal plate from her chest and closed her sternum, a procedure they were waiting to do following sufficient lung strength and growth. Like her sister, Knatalye is being weaned from the G-tube and is learning to eat on her own. She is walking well, Cass said, but her pelvis is still a bit separated, something she might have to get more work done on in the future.

“I’ve always said the girls will walk into kindergarten one day together and I definitely think that will still be true,” Cass said.

View a series of photos from the Mata’s visit below.

July 19, 2016

72016fetalconference640The International Fetal Medicine and Surgery Society (IFMSS) led by co-presidents Doctors Oluyinka and Olutoyin Olutoye, will convene for its annual meeting in Kasane, Botswana from August 2 to 7, 2016. This is the second time the meeting has been held on the African continent in the society’s 35-year history.

The IFMSS is an international gathering of fetal medicine practitioners from all over the world,” said Dr. Oluyinka Olutoye, co-director of Texas Children’s Fetal Center. “The annual meeting is the forum where innovations in fetal therapy are discussed even prior to general dissemination.”

Topics that will be discussed at the meeting include updates on the management of fetuses with spina bifida, innovative therapies for congenital diaphragmatic hernia (CDH), advances in the management of complex twin problems, as well as topics on ethics, anesthesia, genetics, cardiology, diagnostics, neonatal care and long-term outcomes amongst others.

Anesthesiologist-in-Chief Dr. Dean Andropoulos is one of the invited keynote speakers. The other keynote speaker is the Executive Director of the BIPAI Center of Excellence in Botswana, Prof. Gabriel Anabwani. Other Texas Children’s physician attendees include Dr. Darrell Cass, co-director of the Fetal Center, who will present the hospital’s experience with the management of CDH, Texas Children’s neurosurgeon Dr. William Whitehead who will deliver a presentation on the fetal management of spina bifida and Texas Children’s maternal-fetal medicine specialist Dr. Alireza Shamshirsaz who will present on fetal intervention for non-immune hydrops.

Other meeting attendees include Drs. Karolina Adam and Joanie Hare of Houston Perinatal Associates, and research fellows Drs. Stephanie Cruz and Patricio Lau who will also present at the meeting and are two of the seven recipients of the young investigator travel award. Kristen Kaiser, PhD, of Texas Children’s Pediatric Surgery Division together with Adam Gibson and Taylor Napier Earle of Texas Children’s Global Health have graciously provided administrative and logistical support for this international meeting.

In addition to the IFMSS meeting in Kasane, Botswana, a pre-meeting symposium will be held in conjunction with the Botswana Pediatric Association and the University of Botswana in the capital city, Gaborone, Botswana from July 31 to August 1. This symposium, also involving international speakers, will address issues in prenatal diagnosis, pediatric anesthesiology, obstetrics, pediatric surgery, cardiology and critical care, and is targeted at Botswana physicians not involved in fetal therapy.

“Serving as co-presidents of an international society is an honor and privilege,” said Dr. Olutoyin Olutoye, director of the Fetal Anesthesia Service at Texas Children’s. “It acknowledges our participation in the society’s activities over the years, reflects our contributions to the field, and places Texas Children’s and Baylor College of Medicine amongst elite institutions whose faculty have led such a prestigious organization.”

The logo for the 35th IFMSS meeting was designed by Beth Sumner of Texas Children’s Department of Surgery, with inspiration from the co-presidents. The elephant acknowledges the region of Botswana where the meeting will be held, which is home to the largest concentration of elephants in the world. The fetus encased in the elephant trunk acknowledges the care of the fetus that is the focus of the meeting.

June 21, 2016

62216journal640The third issue of The Journal of Texas Children’s Hospital was recently released along with its companion website for online readers. Visit the site here to get a look at the third issue, which features a special section on the separation of conjoined twins Knatalye Hope and Adeline Faith Mata.

The special section is organized into three main parts: pre-surgery, surgery and post-surgery, all of which demonstrate the expertise, talent and comprehensive care available at Texas Children’s. The section lays out the extent to which our team nurtured a trusting rapport with the family, and skillfully cared for and thoughtfully treated the Mata babies from the time they were born until a little more than a year later when they were discharged to their home in west Texas.

Additional features of this edition’s The Journal include:

  • A column from Texas Children’s President and CEO Mark A. Wallace detailing how we have grown as an organization in size, staff and programming in order to continue to meet our ever increasing demand and to be the court of last resort for so many in need.
  • An in-depth look at the U.S. News and World Report rankings, what they mean, how they are formed and whether they have made Texas Children’s, which is ranked the 4th best children’s hospital in the nation, a better, stronger health care institution.
  • A story about the opening of the Special Isolation Unit at Children’s Hospital West Campus and how it demonstrates how Texas Children’s runs toward problems instead of away from them when it comes to the wellbeing of children and their families.
  • An intriguing piece about the research Texas Children’s is doing on a promising treatment using fecal bacteriotherapy to treat inflammatory bowel disease in children.
  • A spotlight on the successful care of morbidly adherent placenta, a potentially fatal condition, in pregnant women.
  • A column from Dr. Stanley Spinner, the chief medical officer of Texas Children’s Pediatrics, about retail-based after-hours care and Texas Children’s efforts to fill that gap by opening quality pediatric urgent care center across the Houston area.

The Journal launched in January 2013, replacing Shine magazine as the organization’s flagship publication. The magazine shares Texas Children’s advancements with intelligent, compelling stories featuring our people, our patients and timely, broadly relevant topics. Along with a philanthropic audience of about 30,000 recipients, the twice-yearly Journal is distributed to another 20,000 recipients, including:

  • CEOs and clinical leaders at all U.S. children’s hospitals and women’s hospitals
  • All U.S. medical school deans and chairs of pediatrics, pediatric surgery, OB/GYN and genetics
  • Physicians in pediatrics, 25 pediatric sub-specialties and women’s health services in Texas and four contiguous states