Successful open fetal surgery gives baby with rare lung mass chance at life

April 15, 2014

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The Texas Children’s Fetal Center proudly announces the birth of baby Cabellotrejo, a boy born healthy at Texas Children’s Pavilion for Women following a complex pregnancy that included open fetal surgery. Early in the pregnancy, doctors diagnosed baby boy Cabellotrejo with a large lung mass, called congenital cystic adenomatoid malformation, or CCAM. Mom and baby were transferred from their hometown of Austin, where the team at the Fetal Center intervened with an open fetal surgery that saved the baby’s life.

During the procedure, which took place on January 16, 2014, the Fetal Center team partially removed the baby from her mother’s womb, opened the baby’s chest and removed the giant mass, returning him safely back into his mother’s womb less than 30 minutes later. The fetal heart failure resolved, and the baby and mother subsequently recovered smoothly; mom remained pregnant for 11(+) weeks before she delivered her health baby boy.

A CCAM is an abnormal growth of malformed lung tissue that is the result of abnormal organ development. The adenomatous overgrowth of terminal bronchioles and reduced number of normal alveoli may cause significant pulmonary effects. It is incredibly rare for these malformations to grow to such a large size as to lead to fetal heart failure, a condition that is very difficult to treat prenatally. The fetus continued to deteriorate despite medical treatment.

“Fetal surgery was the only hope for this baby boy who was sure to die without surgical intervention. The good outcome achieved in this case is the result of great teamwork, including the contributions by our expert fetal radiologists, cardiologists and maternal fetal surgery team. I am so pleased this baby has recovered fully and now has the hope of a completely normal life,” said Dr. Cass, co-director of Texas Children’s Fetal Center, and lead surgeon on this case.

In addition to an expert OR team, nurse coordinators and pediatric anesthesiologists, a multidisciplinary team of specialists, including: Dr. Darrell Cass, Dr. Oluyinka O. Olutoye, Dr. Wesley Lee, Dr. Michael Belfort, Dr. Nancy Ayres, Dr. Rodrigo Ruano, Dr. Christopher Cassady and Dr. Alireza Shamshirsaz worked together on the case.

To date, only two other centers in the world have been successful at treating this rare and complex medical condition. Texas Children’s Hospital has performed 59 open fetal surgeries since 2003, but seeing that healthy baby enter the world never gets old.

“Baby Cabellotrejo is a fighter and a survivor. We are ecstatic that his parents have delivered a healthy baby boy,” said Cass, of the Fetal Center’s latest patient success.